People with intellectual and/or developmental disabilities and their families and professionals often engage in person-centered planning to determine current and future supports needed to improve quality of life. Previous practice focused heavily on applying for disability specific supports referred to as formal supports and waiting hopefully,…

Limited research is available on the effectiveness of person-centered planning on the quality of life of adults with intellectual and developmental disabilities (ID/D) living in group homes. Our qualitative study sought the perspectives of five group home residents with ID/D, two external consultant coaches, and 14 key personnel in various roles…

The transition to adulthood for young adults with intellectual and developmental disabilities (IDD) is known for its unique challenges, such as limited or non-existent services after high school and poor outcomes faced in adulthood. Given these challenges, it is important to further explore the transition planning experiences of caregivers and…

Background: Study of frailty in adults with intellectual and developmental disabilities (IDD) is relatively new. To build the body of literature, an international consensus statement on how to support adults with IDD as they become frail was developed based on fictional cases. This study examined the face validity and applicability of the…

Background: Given the increasing lifespans of individuals with intellectual and developmental disabilities (IDD), siblings may fulfil multiple caregiving roles simultaneously for their ageing parents, their offspring, and their brother or sister with IDD. Yet, little is known about compound sibling caregivers. The purpose of this study was to…

Given the increased longevity of people with intellectual and developmental disabilities (IDD), future planning programs are becoming increasingly common. However, although siblings are likely to fulfill caregiving roles for people with IDD, siblings have not been included in future planning interventions. The purpose of this study was to evaluate…

This study used a correlational design to explore the association between parent demographics, parent experiences, and parent expectations, and parent involvement for families supporting African American youth with IDD. Chi-square statistical analyses were used to determine the associations between parent involvement and factors related to…

Goal setting and attainment is often a targeted outcome in the intellectual and developmental disabilities field; however, standardizing the measurement of attainment of individualized goals is challenging. The purpose of this article is to introduce a four-domain framework that provides a series of questions to research and evaluation teams in…

The problems associated with undue and overbroad guardianship for people with intellectual and developmental disability (IDD) have received increasing attention in recent years. In simple terms, guardianship threatens one's ability to exercise self-determination and make important decisions that reflect their own unique values, preferences, and…

Background: As adults with intellectual and developmental disabilities (IDD) have longer lives, parents may remain caregivers into old age. In addition, it is unknown who will fulfil caregiving roles after parents are no longer able to be caregivers. In the current study, we explored the nature (e.g. number of hours of caregiving) and correlates…

Educator teams consisting of a general education teacher and a special education teacher were recruited to participate in a project where they used the Systematic Supports Planning Process (SSPP) to plan, implement, and monitor individualized supports for students with intellectual and developmental disabilities (IDD) attending general education…

Background: This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions. Method: Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one…

Background: This study investigated transition, or school leaving, as experienced by young adults living in Aotearoa New Zealand who had significant intellectual and developmental disabilities. Method: To investigate these typically unheard perspectives, qualitative methods were adapted to individual communication preferences. Personal and…

Eight dyads (N = 16) residing in Western Canada participated in this investigation of how young adults with intellectual and developmental disabilities (IDD) and their parents jointly construct, articulate, and act on goals pertinent to the young adults' transition to adulthood. Using the action-project method to collect and analyze conversations…

Background: Person-directed planning (PDP) is an approach to planning supports that aims to redistribute power from the service system to individuals with intellectual and developmental disabilities (IDD) and natural supports, improve relationships and build community. To do this, the right people with the right attitudes engaging in the right…