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Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children with Intellectual Disabilities and/or Who Are Autistic
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Daniel Sutherland; Samantha Flynn; Joanna Griffin; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8-13. We investigated experiences of Positive Family…
Descriptors: Developmental Disabilities, Children, Early Adolescents, Family Environment
Parents' Initiative in Community-Based Support for Children with Intellectual and Developmental Disabilities: The "Ahada" Non-Profit Model
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Orly Ganany-Dagan – Journal of Intellectual & Developmental Disability, 2025
Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed…
Descriptors: Intellectual Disability, Developmental Disabilities, Inclusion, Foreign Countries
A Tale of Two Adaptations of a Special Education Advocacy Program
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Burke, Meghan M.; Goldman, Samantha E.; Li, Chak – Intellectual and Developmental Disabilities, 2023
Special education advocacy programs support families to secure services for their children with intellectual and developmental disabilities. Although research demonstrates the efficacy of one such program (the Volunteer Advocacy Project), its effectiveness when replicated by others is unknown. Replication research is critical to ensure that…
Descriptors: Special Education, Advocacy, Replication (Evaluation), Educational Change
Formal Support and Service Needs of Family Caregivers of Adults with Intellectual and/or Developmental Disabilities in India
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Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
Supporting Families through the Charting the LifeCourse Framework
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Gotto, George S.; Reynolds, Michelle C.; Palmer, Susan B.; Chiang, Danielle F. – Intellectual and Developmental Disabilities, 2019
Supporting families who have family members with intellectual and developmental disabilities (IDD) as they move through life is a critical need (Reynolds, Palmer, & Gotto, 2018). The phrase, "supporting families," juxtaposes the typical family support paradigm in response to the ongoing shrinkage of federal and state dollars and the…
Descriptors: Family Programs, Caregivers, Services, Intellectual Disability
Beyond Training: Engaging Families in the Transition to Employment. Bringing Employment First to Scale, Issue No. 12
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Kramer, John; Bose, Jennifer; Shepard, John – Institute for Community Inclusion, 2017
Families can be the most influential factor in successful employment and life planning for people with intellectual and developmental disabilities (IDD), often leading them on the path to employment by serving as role models for work ethic and behavior. Yet families often lack the knowledge to move employment from an abstract belief to a real job.…
Descriptors: Intellectual Disability, Developmental Disabilities, Family Programs, Family Involvement
Out of School and into Distress: Families of Young Adults with Intellectual and Developmental Disabilities in Transition
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McKenzie, Katherine; Ouellette-Kuntz, Hélène; Blinkhorn, Ashleigh; Démoré, Ashley – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The transition period out of the educational system can be a source of stress for parents of young adults with intellectual and developmental disabilities, as families lose the support and respite offered by schools. Materials and Methods: Using a before and after design nested within a 24-month follow-up study of parents seeking adult…
Descriptors: Young Adults, Developmental Disabilities, Transitional Programs, Intellectual Disability