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Direct linkSchwartz, Ariel E.; Kramer, Jessica M. – British Journal of Learning Disabilities, 2021
Background: Patient-reported outcome measures (PROMs) are increasingly used in health care to evaluate service quality and client progress. Response scales are a critical component of PROM content validity and must be designed to be relevant and comprehensible by users. Methods: In collaboration with eight youth co-researchers with…
Descriptors: Test Construction, Content Validity, Measurement Techniques, Outcomes of Treatment
Kramer, Jessica M.; Schwartz, Ariel; Hallock, Taye; Myrvold, Raine; Hwang, I-Ting; Pfeiffer, Beth – Journal of Intellectual Disabilities, 2023
Research teams must collaborate with people with intellectual and developmental disabilities to identify effective and inclusive responses to the COVID-19 pandemic and other public health emergencies. Collaborating remotely requires telecommunication and other technologies. We designed and evaluated a digital "Toolkit for Remote Inclusive…
Descriptors: Inclusion, Developmental Disabilities, Intellectual Disability, Access to Computers
Hwang, I-Ting; Hallock, Taye M.; Schwartz, Ariel E.; Roth, Stephanie; Pfeiffer, Beth; Kramer, Jessica M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We conducted a rapid scoping review to identify how inclusive research teams use technology during the research process that could support remote collaboration during public health emergencies like the COVID-19 pandemic. Method: We searched three databases and conducted a hand search. Two independent reviewers screened 1498 abstracts…
Descriptors: Technology, Research, Cooperation, Inclusion
Kramer, Jessica M.; Beasley, Joan B.; Caoili, Andrea; Goode, Tawara; Guerrero, Fiorella; Klein, Ann; Grosso, Elizabeth; Kennelly-Smith, Elizabeth – Journal of Mental Health Research in Intellectual Disabilities, 2023
Introduction: Quality services for persons with intellectual and developmental disabilities and mental health needs (IDD-MH) requires timely access to services that are responsive to their needs and preferences. This study explores virtual service delivery from the perspectives of family caregivers of persons IDD-MH during the onset of the…
Descriptors: Caregivers, Family Attitudes, Intellectual Disability, Developmental Disabilities
Schwartz, Ariel E.; Kramer, Jessica M.; Rogers, E. Sally; McDonald, Katherine E.; Cohn, Ellen S. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Young adults with intellectual/developmental disabilities and co-occurring mental health conditions (IDD-MH) experience significant mental health disparities. Barriers to services include transportation and stigma associated with services. Peer mentoring (PM) may be one solution to these barriers. Methods: We conducted exploratory…
Descriptors: Mentors, Intervention, Program Development, Peer Relationship
Kramer, Jessica M.; Schwartz, Ariel E.; Watkins, Destiny; Peace, Micah; Luterman, Sara; Barnhart, Ben; Bouma-Sims, Jacob; Riley, Jessica; Shouse, Janet; Maharaj, Ravita; Rosenberg, Cordelia Robinson; Harvey, Karyn; Huereña, Juliana; Schmid, Katy; Alexander, Jennifer Sladen – Journal of Mental Health Research in Intellectual Disabilities, 2019
Introduction: The Intellectual and Developmental Disability Mental Health (IDD-MH) Research Partnership was created to learn about the experiences and needs of young adults with IDD-MH while accessing and using mental health services. Our national partnership consists of six young adults, five professionals, researchers at Boston University, and…
Descriptors: Young Adults, Intellectual Disability, Developmental Disabilities, Mental Disorders
