Parents of children who are deaf or hard-of-hearing (D/HH) need clear and complete information about early intervention options. There is a body of research on parents' reactions to, and perceptions of, information they encountered following their child's diagnosis, but little research examining the information itself. This paper reports on a…

Autism diagnoses in adulthood have risen substantially over recent years. While providing potential benefits, many autistic adults struggle to navigate their new diagnosis. Our review aimed to synthesise the evidence for post-diagnostic support for autistic adults without intellectual disability diagnosed in adulthood in the UK: investigating…

A family-centered early intervention (EI) approach mandated by the U.S. Individuals with Disabilities Education Act (IDEA) Part C, means involving parents fully in EI and ensuring they know their legal rights and responsibilities for participating. However, many parents report difficulty accessing information and decision-making in EI. IDEA…

Metadata are crucial for discovery and access by providing contextual, technical, and administrative information in a standard form. Yet metadata are also sites of tension between sociocultural representations, resource constraints, and standardized systems. Formal and informal interventions may be interpreted as quality issues, political acts to…

Background: Eighty-five percent of medical research goes to waste, partly because it is not appropriately communicated to stakeholders. This represents a critical issue for the research community, especially because individuals who are impacted by research should be able to readily access that research. Making research findings accessible to key…