Students with sex chromosome aneuploidies (SCAs) are at increased risk for learning disabilities and often require individualized supports in the school setting. Parents of students with rare disorders such as SCAs possess a unique understanding of their child's educational experiences and play a crucial role in the development of successful…

Children with fragile X syndrome (FXS) display wide-ranging intellectual and behavioral abilities that affect daily life. We describe the educational setting of students with FXS and assess the relationships between school setting, co-occurring conditions, and functional ability using a national survey sample (n = 982). The majority of students…

Approximately 30,000 people in the United States have cystic fibrosis (CF), and each year around 1,000 new cases are diagnosed. About one half of this population consists of school-age youth. With an understanding of the psychosocial and mental health factors surrounding CF, school psychologists are well positioned to support children and…

Introduction: Children with CHARGE syndrome often experience significantly delayed motor development, which affects their performance in many motor skills and physical activities. The purpose of this study was to determine the status of physical education provided to children with CHARGE syndrome. There were five main areas of focus: (1) physical…

This is the story of Lily, a 12-year-old girl with Williams Syndrome (WS). A reading program was developed to meet Lily's specific reading needs while addressing her individual learning style; this includes attending to the unique characteristics of Williams Syndrome. During this school year, Lily showed significant gains in sight word recognition…