Background: The perception and experience of death with respect to individuals with intellectual disability are almost unexplored in the Polish context. We aimed to understand how these persons conceptualise death, understand their experiences associated with it, and the meanings they ascribe to it. Method: The study was designed and conducted…

Introduction: Like the broader population, people with intellectual disability (ID) experience the process of grief after loss of a loved one. However, there are a series of risk factors characteristic of this population that can hinder the development of adaptive grief, including cognitive and affective aspects. The objective of this study was to…

Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…

Background: This paper considers the challenges regarding the development and use of self-report tools for sensitive, personal topics, in this case experiences of death and bereavement for individuals with intellectual disabilities (ID). These challenges are represented through the experience of the development of a self-report measure of…

Background: The present study investigated psychologists' views of the experience of death and bereavement among children with intellectual disabilities. Materials and Methods: Twelve psychologists with experience of working with children with intellectual disabilities (Educational = 2, Clinical = 8, and Behavioural analysts = 2; average years of…

Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…

Background: As the life expectancy of adults with intellectual disability has increased, experience of familial bereavement is becoming more frequent. However, this group may not receive adequate information and support to enable them to understand and cope with the experience of loss. Method: This narrative review examined the impact of…

Background: The aim of this study was to examine the characteristics associated with the grieving process among a population with intellectual disability and the influence of particular variables. Materials and Methods: The sample was composed of 380 participants with intellectual disability, on whose behalf 149 professionals completed a 20-item…

Background: Historically, people with intellectual disabilities have tended to be excluded from knowing about death, dying and bereavement. Staff in intellectual disability services can play a valuable role in improving understanding of these issues in those they support. This qualitative metasynthesis aimed to understand the experiences of staff…

Background: An increased awareness of how people with intellectual disabilities (ID) understand death and dying is necessary in supporting life-long learning, post-bereavement support and planning end-of-life care. Previous research suggests that adults with ID have a limited or "patchy" understanding of the basic biological components…

Objectives: Engaging people with profound intellectual and multiple disabilities (PIMD) in relation to issues of bereavement and loss is often seen as a complex therapeutic challenge. The author examines the barriers preventing them from engaging with the grieving process in supported ways. Methods: Through the lens of Worden's Tasks of Grief…

Background: A paucity of information is available on direct care workers' (DCWs') experiences with loss when their clients (people with intellectual and developmental disabilities [I/DD]) die. This study explored DCWs' grief experiences, their coping methods and their needs for support. Methods: A thematic analysis approach was used to examine…

Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has…