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Direct linkDykens, Elisabeth M.; Roof, Elizabeth; Hunt-Hawkins, Hailee – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Despite work on the self-identities of people with intellectual disabilities, research has yet to describe the self-perceptions of people with Prader-Willi syndrome (PWS). The perspectives of those with PWS are also important for rapidly evolving clinical trials aimed at treating symptoms of PWS. Method: Twenty-one young people with…
Descriptors: Genetic Disorders, Self Concept, Symptoms (Individual Disorders), Hunger
