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Families of Children with Down Syndrome: What We Know and What We Need to Know

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Cuskelly, Monica; Hauser-Cram, Penny; Van Riper, Marcia – Down Syndrome Research and Practice, 2009

This paper provides a brief overview of what is currently known about families of children with Down syndrome. In addition, it highlights a number of issues that require further research if we are to have a thorough understanding of the impact of a child with Down syndrome on families as a system and on the individuals who make up that system.…

Descriptors: Down Syndrome, Longitudinal Studies, Child Rearing, Fathers