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Direct linkFolch, Annabel; Salvador-Carulla, Luis; Vicens, Paloma; Cortés, Maria José; Irazábal, Marcia; Muñoz, Silvia; Rovira, Lluís; Orejuela, Carmen; González, Juan A.; Martínez-Leal, Rafael – Journal of Applied Research in Intellectual Disabilities, 2019
Background: The aim of this paper was to summarize the main results of the POMONA-ESP project, the first study to explore health status in a large representative, randomized and stratified sample of people with intellectual developmental disorders in Spain. Methods: The POMONA-ESP project collected information about the health of 953 individuals…
Descriptors: Health, Intellectual Disability, Health Services, Drug Therapy
Cooper, Sally-Ann; Hughes-McCormack, Laura; Greenlaw, Nicola; McConnachie, Alex; Allan, Linda; Baltzer, Marion; McArthur, Laura; Henderson, Angela; Melville, Craig; McSkimming, Paula; Morrison, Jill – Journal of Applied Research in Intellectual Disabilities, 2018
Background: In the UK, general practitioners/family physicians receive pay for performance on management of long-term conditions, according to best-practice indicators. Method: Management of long-term conditions was compared between 721 adults with intellectual disabilities and the general population (n = 764,672). Prevalence of long-term…
Descriptors: Primary Health Care, Adults, Intellectual Disability, Comparative Analysis
Download full textRabie, Faten M.; Al Asmari, Aishah H.; Al-Barak, Sara A.; Al-Rashed, Fatima M.; Mare, Najla – Journal of Education and Practice, 2016
Epilepsy is a heterogeneous collection of neurological conditions and syndromes characterized by recurrent, unprovoked, paroxysmal seizure activity. It is estimated that 10.5 million children under 15 years have active epilepsy, representing about 25% of the global epilepsy population. Of the 3.5 million people who develop epilepsy annually, 40%…
Descriptors: Genetics, Incidence, Epilepsy, Early Intervention
Atladóttir, H. Ó.; Schendel, D. E.; Parner, E. T.; Henriksen, T. B. – Journal of Autism and Developmental Disorders, 2015
The aim of this study was to describe the profile of specific neonatal morbidities in children later diagnosed with autism spectrum disorder (ASD), and to compare this profile with the profile of children with hyperkinetic disorder, cerebral palsy, epilepsy or intellectual disability. This is a Danish population based cohort study, including all…
Descriptors: Autism, Pervasive Developmental Disorders, Neonates, Child Health
Dravet, Charlotte – Developmental Medicine & Child Neurology, 2011
Severe myoclonic epilepsy of infancy (SMEI) is a complex form of epilepsy that was first described in France in 1978. Because the myoclonic component of this epilepsy is not always present and because some variability has been observed in the symptomatology, the name was changed to Dravet syndrome in 1989. The genetic aetiology of this epilepsy…
Descriptors: Epilepsy, Patients, Genetics, Foreign Countries
Illingworth, Marjorie A.; Hanrahan, Donncha; Anderson, Claire E.; O'Kane, Kathryn; Anderson, Jennifer; Casey, Maureen; de Sousa, Carlos; Cross, J. Helen; Wright, Sukvhir; Dale, Russell C.; Vincent, Angela; Kurian, Manju A. – Developmental Medicine & Child Neurology, 2011
Fever-induced refractory epileptic encephalopathy in school-age children (FIRES) is a clinically recognized epileptic encephalopathy of unknown aetiology. Presentation in previously healthy children is characterized by febrile status epilepticus. A pharmacoresistant epilepsy ensues, occurring in parallel with dramatic cognitive decline and…
Descriptors: Seizures, Drug Therapy, Outcomes of Treatment, Diseases
Wong, Chi Wai – Journal of Policy and Practice in Intellectual Disabilities, 2011
The aim of this study was to describe the health status profile and identify the healthcare needs of adults with intellectual disability (ID) residing in 18 of Hong Kong's residential care facilities. The author employed a cross-sectional study using a structured questionnaire survey to collect data on 811 persons with ID (432 males, 53.3%, and…
Descriptors: Epilepsy, Heart Disorders, Incidence, Dementia
Haveman, Meindert; Perry, Jonathan; Salvador-Carulla, Luis; Walsh, Patricia Noonan; Kerr, Mike; Lantman-De Valk, Henny Van Schrojenstein; Van Hove, Geert; Berger, Dasa Moravec; Azema, Bernard; Buono, Serafino; Cara, Alexandra Carmen; Germanavicius, Arunas; Linehan, Christine; Maatta, Tuomo; Tossebro, Jan; Weber, Germain – Journal of Intellectual & Developmental Disability, 2011
Background: POMONA II was a European Commission public health-funded project. The research questions in this article focus on age-specific differences relating to environmental and lifestyle factors, and the 17 medical conditions measured by the POMONA Checklist of Health Indicators (P15). Method: The P15 was completed in a cross-sectional design…
Descriptors: Public Health, Check Lists, Life Style, Mental Retardation
Martinez-Leal, R.; Salvador-Carulla, L.; Linehan, C.; Walsh, P.; Weber, G.; Van Hove, G.; Maata, T.; Azema, B.; Haveman, M.; Buono, S.; Germanavicius, A.; van Schrojenstein Lantman-de Valk, H.; Tossebro, J.; Carmen-Cara, A.; Berger, D. Moravec; Perry, J.; Kerr, M. – Journal of Intellectual Disability Research, 2011
Background: Despite progress in the process of deinstitutionalisation, very little is known about the health conditions of people with intellectual disability (PWID) who live in large institutions and PWID living in small residential services, family homes or independent living within the community. Furthermore, there are no international…
Descriptors: Obesity, Independent Living, Health Promotion, Mental Retardation
Mouridsen, Svend Erik; Bronnum-Hansen, Henrik; Rich, Bente; Isager, Torben – Autism: The International Journal of Research and Practice, 2008
This study compared mortality among Danish citizens with autism spectrum disorders (ASDs) with that of the general population. A clinical cohort of 341 Danish individuals with variants of ASD, previously followed over the period 1960-93, now on average 43 years of age, were updated with respect to mortality and causes of death. Standardized…
Descriptors: Epilepsy, Autism, Foreign Countries, Mortality Rate
Maatta, Tuomo; Kaski, Markus; Taanila, Anja; Keinanen-Kiukaanniemi, Sirkka; Iivanainen, Matti – Down Syndrome Research and Practice, 2006
The relationship between poor health and cognitive impairment is not fully understood yet. People with Down syndrome are prone to a number of health problems, including congenital heart defect, visual impairment, hearing loss, autoimmune diseases, epilepsy, early-onset Alzheimer's disease and intellectual disability. Our aim was to assess the…
Descriptors: Visual Impairments, Mental Retardation, Alzheimers Disease, Dental Health
