Background: There is a lack of information about cross-sector service use by children with developmental disabilities despite their need for services from multiple sectors. Methods: Responses to service use questions from a parent-completed survey on school-aged children who attended clinics specific for those with developmental disabilities at a…

The COVID-19 pandemic has imposed unprecedented service interruptions in many sectors including services for children and youth with neuro-developmental disabilities (NDD). We examined the experiences of service providers as they supported this population during the pandemic. Five focus groups were convened with 24 service providers offering…

Using a mobile health application (i.e., app) to empower primary caregivers of young children with developmental disorders in low- and middle-income countries is opening up new avenues for early childhood intervention. Thirteen caregivers and 10 speech-language pathologists participated in 3 focus groups to explore their perspectives about the…

Background: Secondary prevention involves the early detection of disease while it is asymptomatic to prevent its progression. For adults with intellectual and developmental disabilities, secondary prevention is critical as they may not have the ability to recognize the early signs and symptoms of disease or lack accessible information about these.…

Background: While there is a growing body of literature in the quality of life of families that include children with disabilities, the majority of research has been conducted in western countries. The present study provides an initial exploration of the quality of life of Malaysian families that include children with developmental/intellectual…

Background: The provision of skilled support is dependent on staff knowledge and understanding (Beadle-Brown J., Beecham J., Mansell J., Baumker T., Leigh J., Whelton R. & Richardson L, unpublished data). Influencing staff knowledge and understanding is an important component of interventions. Materials and Methods: Fourteen individual…

This article aims to analyze early intervention programs in Israel according to the Developmental Systems Model (Guralnick, 2001), in an attempt to identify strengths and areas for further development for service delivery for young children with disabilities in Israel. Early intervention in Israel is part of a comprehensive healthcare model…

Compares programs of the Southwark Consortium in London and Denver Options, Inc. in Colorado in the delivery of services to individuals with developmental disabilities. Identifies cross-cultural implications. (SK)

This article describes a model of comprehensive and coordinated services in developmental disability medicine developed for children and adults in Kogarah, New South Wales, Australia. Key features of the model are a conjoint structure between government departments of health and community services, multiple medical specialty clinics, and…

This paper presents a framework for early intervention for children having (or at risk of developing) disabilities, produced by Eurlyaid, a working party of the European Community. The framework addresses definitions of key concepts, the target group, rationale behind early intervention, content of early intervention, conditions necessary for…

A survey of doctors (51 responses) working with people with developmental disabilities in New South Wales (Australia) found a high attrition rate and flagging morale for health care professionals, which were attributed to implementation of the "Guardianship Act" and transfer of services from the Department of Health to the Department of…

A system of statewide early intervention for children with developmental delays and/or disabilities was established in Bavaria (Germany) in the 1970s. This article discusses current issues, advantages and disadvantages of proximal (homebound) and centralized (center-based) services, the call for a changing model of early intervention, and…

This paper addresses the need to create relationships and supports that offer people with substantial disabilities the assistance they require to increase effective control of their lives ("power sharing"). The paper is based on experience and research in North American and British services to people with intellectual disabilities, autism, and…

Previous research on early intensive intervention in autistic spectrum disorder (ASD) has largely focused on outcomes of treatment for children. Although some account has been taken of parental viewpoints, the potential impact of intervention on families has not achieved the same kind of research prominence. This contrasts with the considerable…