Issues of positionality of Black African researchers researching African issues is seldom discussed in methodological literature. In this article, I reflect from an African perspective on issues of insider/outsider positionalities and of serendipity and unexpectedness during my fieldwork which are areas often dominated by writing from the global…

Background: People with intellectual disability (ID) and epilepsy are more likely to die prematurely than the general population. A significant number of deaths in people with epilepsy may be potentially preventable through better seizure control, regular monitoring and raising awareness among patients and carers. The aim of this project was to…

As the life expectancy of people with intellectual disability (ID) increases, it is becoming necessary to understand factors affecting survival. However, predictors that are typically assessed among healthy people have not been examined. Predictors of all-cause mortality, including blood, urine, anthropometry, and nutritional indices, were…

This study compared mortality among Danish citizens with autism spectrum disorders (ASDs) with that of the general population. A clinical cohort of 341 Danish individuals with variants of ASD, previously followed over the period 1960-93, now on average 43 years of age, were updated with respect to mortality and causes of death. Standardized…

Examination of the prevalence of epilepsy and health service utilization in 1,595 people with intellectual disabilities in Wales found 16.1% had epilepsy. Standardized activity ratios were 3.07, 2.03, and 3.09 for inpatients, outpatients, and accident and emergency, respectively. Patients with intellectual disability and co-existing epilepsy used…