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Sedlácková, Dagmar; Kantor, Jirí; Dömischová, Ivona; Kantorová, Lucia – British Journal of Learning Disabilities, 2023
Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic…
Descriptors: Experience, Mothers, Severe Disabilities, Severe Intellectual Disability
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Kasper Kruithof; Maartje Hoogsteyns; Ilse Zaal-Schuller; Sylvia Huisman; Dick Willems; Appolonia Nieuwenhuijse – Journal of Intellectual & Developmental Disability, 2024
Background: Parents' tacit knowledge plays an important role in the care of persons with profound intellectual and multiple disabilities (PIMD). As little is known about its nature and use, we aimed to explore this parental tacit knowledge. Method: We conducted semi-structured interviews with parents (n = 11) about their tacit knowledge of their…
Descriptors: Parents, Parent Child Relationship, Knowledge Level, Children