Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed…

Background: Building Circles of Support is an innovative strategy for developing natural support networks. This study explored some of the ambiguity in the conceptualisations, operational elements, and perceived outcomes of Circles of Support programs. Method: A comparative case study of three Australian Circles of Support programs was conducted.…

Background: Adults with Fetal Alcohol Syndrome (FAS) experience many adverse health and social outcomes, yet their healthcare utilisation is under-researched. Method: This population-based descriptive cohort study utilised ICES provincial administrative health databases and Canadian Death Vital Statistics to identify adults with FAS via usage of…

Background: Since COVID-19, remote consultation (by telephone and video) has become widespread. This study investigated the experience of using remote consultation in Specialist Intellectual Disability Community services. Method: A total of 126 health staff working across eight Specialist Intellectual Disability Community teams in the NHS Health…

Background: Internships may be a successful pathway for increasing employment rates among people with intellectual disability. This paper presents a summative evaluation of a brief film internship program for people with intellectual disability. Method: At the commencement and conclusion of the internship, semi-structured interviews were conducted…

Background: The transition from school to adult life is challenging for young people with intellectual disability. The study aimed to explore how young people with intellectual disability themselves experience the transition from school to adult life. Methods: A co-designed, qualitative study. Thematic data analysis of qualitative survey…

Background: After decades of planning, nurses played a pivotal role in achieving the closure of large residential institutions for people with intellectual disability by 2018. This paper describes the experiences of nurses facilitating the closure of these institutions in New South Wales and Victoria, Australia. Method: An interview-based,…

Background: Australia has limited supports to help families where Fetal Alcohol Spectrum Disorder (FASD) impacts children and young people. National Organisation for Fetal Alcohol Spectrum Disorder Australia (NOFASD), in conjunction with the University of Otago, New Zealand, piloted and established a 7-week online program to assist caregivers to…

Background: A growing number of services are focused on people with intellectual disabilities. Our study investigates interpersonal justice (interpersonal treatment families receive from service professionals) perceived by family members as a heuristic (cognitive shortcut) they can use to evaluate service performance directed towards improving the…

Background: It is mandatory for staff in Swedish community services for people with intellectual disabilities to report incidents of error or malpractice. Aim The aim is to study if incident reports contribute to developing quality in services for people with intellectual disabilities who present with challenging behaviours. Method: 159 reports on…

Background: Research on post-secondary training for individuals with intellectual disabilities has generally focused on programs, with little consideration of the structures and mechanisms that give rise to them. This article adopts a critical realist perspective to comparatively analyse and theorise about the contextual structures contributing to…

Background: Intellectual disability organisations in the Netherlands are seeking to improve clients' quality of care by implementing methods that reduce involuntary care. This study described insights gained from sharing tacit and experiential implementation knowledge in Communities of Practice (CoP). Method: In a participatory research, managers,…

Background: This article reports research about the experiences of families with an adult child with intellectual disability as they engaged in the NDIS planning processes in Australia. Method: Parents of 19 adults with intellectual disability responded to a number of closed and Likert-type items and provided comments. Responses are reported using…

Background: Although older adults with intellectual and/or developmental disabilities face high risks of maltreatment, there are few interventions available to reduce these risks. This study describes the development of a research-based intervention that aims to reduce the risks of maltreatment for this population. Method: The development involved…

Background: Providing medical and dental care for adults with developmental disabilities requires specialised care that includes caregiver's perceptions of processes of care as integral to informing care delivery. Method: We examined the reach and efficacy of a medical-dental clinic serving adults with developmental disabilities as part of a…