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A. Miceli; L. Lucassen; R. Rinaldi; N. Van Ooteghem; D. Walter; M. Perau; C. Kahwaji; A. Mayart; E. Batselé – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Health Needs
Vivienne Riches; Trevor Parmenter; Gisselle Gallego; Ziad Al-Rubaie; Mary-Ann O'Donovan; Patricia O'Brien – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Australia's National Disability Insurance Scheme (NDIS) funds individualised supports to increase choice and control. The relationship between NDIS individualised funding, outcomes for wellbeing and exercising choice and control for people with intellectual disability has been unclear. Method: Adult NDIS participants with intellectual…
Descriptors: Well Being, Decision Making, Correlation, Intellectual Disability
Beata Gumienny; Aneta Lew-Koralewicz – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Health awareness is an important factor in preventive health and healthy lifestyles of children and adolescents with an intellectual disability. The research objective is therefore to explore the perspective of people with intellectual disability regarding their health-related experiences and the meanings they assign to health.…
Descriptors: Adolescents, Intellectual Disability, Foreign Countries, Secondary School Students
Natasha A. Spassiani; Anna Higgins; Stephan Tait; Aaron Hume; Sam Abdulla; Ruth Paterson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is little research that has examined what support strategies are effective to help adults with intellectual disabilities take their prescribed medication correctly. The aim of the study was to gain an understanding of the barriers and supports that contribute to adults with intellectual disabilities self-managing their prescribed…
Descriptors: Drug Therapy, Health Behavior, Adults, Intellectual Disability
Alison Devitt; Melissa Nott; Stephanie Nelson; Julia Sgarlata; Michelle Gray; Srilaxmi Balachandran; Asma Taskin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…
Descriptors: COVID-19, Pandemics, Access to Health Care, Program Effectiveness
Kasey Fullwood; Andrew Collaro; Lachlan Power; Jasneek Chawla – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on…
Descriptors: Down Syndrome, Children, Sleep, Quality of Life
Madelaine Carter; Nicole Bobbette; Sabrina Campanella; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Workers in the intellectual disability sector encounter significant work-related stress impacting their mental health. This study explores the barriers faced by these workers when accessing mental health support during the pandemic. Methods: 1831 surveys were completed by intellectual disability support workers from Ontario, Canada…
Descriptors: Employees, Intellectual Disability, Barriers, Mental Health
McNeil, Karen; Achenbach, Jillian; Lawson, Beverley; Delahunty-Pike, Alannah; Barber, Brittany; Diepstra, Heidi – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although the Canadian Consensus Guidelines for Primary Care of Adults with Intellectual and Developmental Disabilities recommends conducting periodic health checks in primary care, uptake is lacking. This study seeks to understand factors influencing the conduct of periodic health checks and identify what needs to change to increase…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Developmental Disabilities
Marianne Durand; Rajan Nathan; Sophie Holt; Sharleen Nall-Evans; Ceri Woodrow – Journal of Applied Research in Intellectual Disabilities, 2024
Background: NHS England's "Transforming Care" agenda aims to reduce the number of adults with intellectual disabilities and autistic adults in mental health hospitals. The aim was to understand the demographic and clinical characteristics of those most at risk of admission. Method: A cohort, retrospective study of adults using community…
Descriptors: Intellectual Disability, Adults, Mental Health, Health Services
Sonja M. Kalf-Scholte; Renate van Zoonen; Dina Sijperda-Abdul; Henk Algra; Cees Valkenburg – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Toothbrushing, limiting intake frequency, and scheduled visits to an oral healthcare professional (OHP) are key for good oral health. We aimed to explore factors influencing these oral health behaviours in Dutch adolescents with mild to borderline intellectual disabilities (MBID) in residential care. Method: Using a qualitative,…
Descriptors: Dental Health, Health Behavior, Adolescents, Mild Intellectual Disability
McCausland, Darragh; Guerin, Suzanne; Tyrrell, Janette; Donohoe, Clare; O'Donoghue, Isabelle; Dodd, Philip – Journal of Applied Research in Intellectual Disabilities, 2021
Research indicates that adults with intellectual disabilities are living longer. However, there is limited research on how this affects health and care needs. Objective: The present study aimed to examine the health and social care needs of older adults with intellectual disabilities in Ireland using multiple informants. Methods: Data were…
Descriptors: Health Needs, Caregivers, Social Services, Employment
Selick, Avra; Durbin, Janet; Salonia, Chanelle; Volpe, Tiziana; Orr, Erin; Hermans, Heather; Zaretsky, Lauren; Malhas, Mais; Lunsky, Yona – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Direct support professionals (DSP) are instrumental in supporting the health care of individuals with intellectual disabilities, yet receive little training and support for this role. We implemented a capacity building intervention for DSPs in a community agency in Ontario, Canada. This study evaluated the perceived value and…
Descriptors: Health Services, Intellectual Disability, Capacity Building, Allied Health Personnel
Chiun-Ho Hou; Yueh-Ching Chou; Christy Pu – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study compared ophthalmologists' and other health-care professionals' attitudes towards people with intellectual disabilities in clinical and nonclinical settings. Methods: Between January 2022 and October 2023, a survey was conducted among 127 physicians, 100 optometrists/opticians, and 86 other health-care professionals in…
Descriptors: Ophthalmology, Physicians, Attitudes toward Disabilities, Intellectual Disability
Majeed-Ariss, Rabiya; Mattison, Michelle; Rodriguez, Pablo M.; White, Catherine – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with learning disabilities are over-represented amongst Sexual Assault Referral Centre service users. This work aims to explore the similarities and differences between service users with and without learning disabilities. Method: Medical notes of 52 service users likely to have a learning disability were compared with 52…
Descriptors: Rape, Referral, Medical Evaluation, Patients
Philcy Philip; Praveen Prasanna; Ravi Vijaya Remi; Reena Samuel; Willy T. George; Martina Shalini Arul Joseph; Mathew Lim; Gregory Armstrong; Nathan Grills – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Children with intellectual and developmental disabilities are at a higher risk of developing dental caries. Few scoping reviews have been conducted in India to understand their issues. We aimed to summarise the distribution and risk factors of dental caries among children and adolescents with intellectual disabilities in India.…
Descriptors: Foreign Countries, Child Health, Intellectual Disability, Developmental Disabilities

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