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Hassan Mansour; Amy Gillions; Jude Brown; Anoushka Pattenden; Susan Hartley; Sarifa Patel; Stephanie James; Martin Styles; Will Mandy; Joshua Stott; Elizabeth O'Nions – Autism: The International Journal of Research and Practice, 2025
Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences of autistic older adults. Semi-structured interviews were conducted with 19 autistic adults…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Older Adults, Health Services
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Aspasia Stacey Rabba; Jodie Smith; Gabrielle Hall; Vanessa Alexander; Kate Batty; Poulomee Datta; Emma Goodall; Melanie Heyworth; Siobhan Lamb; Wenn Lawson; Rozanna Lilley; Katy Reid; Najeeba Syeda; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Successful partnerships between families and schools can substantially improve children's success in and out of school. Yet parents of autistic children often report considerable challenges with their children's education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences…
Descriptors: Autism Spectrum Disorders, Mothers, Parent Attitudes, Parent School Relationship
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James D. Lee; Hedda Meadan; Enkhjin Oyunbaatar; Amarbuyan Amar – Autism: The International Journal of Research and Practice, 2024
Although global prevalence of autism has grown substantially, researchers still report inequity in access to evidence-based interventions in many low-resource settings where majority of world's children live. Capacity building of diverse stakeholders in low-resource settings has been suggested to be a potential way to mitigate low levels of access…
Descriptors: Capacity Building, Autism Spectrum Disorders, Evidence Based Practice, Intervention
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Kathryn Asbury; Umar Toseeb; Naomi Barrow – Autism: The International Journal of Research and Practice, 2024
Concerns have been raised about genomic studies of autism. Most recently, the Spectrum 10 K study was paused due to criticism from the autistic community. This situation raised important questions about how the autistic and autism communities perceive genomic research. The Personal Experiences of Autism and Perceptions of DNA-based-research study…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Children, Parent Attitudes
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Zsófia Szlamka; Cukier Sebastián; Charlotte Hanlon; Rosa A. Hoekstra – Autism: The International Journal of Research and Practice, 2024
Autistic children and their caregivers in Argentina often lack access to information, resources and evidence-based interventions. Caregiver empowerment may help support families to uphold their child's rights and access suitable education and support. This study aimed to examine the perceptions on empowerment of caregivers of autistic children in…
Descriptors: Children, Caregivers, Autism Spectrum Disorders, Empowerment
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Sturrock, Alexandra; Chilton, Helen; Foy, Katie; Freed, Jenny; Adams, Catherine – Autism: The International Journal of Research and Practice, 2022
Subtle language and communication difficulties are persistent and pervasive for autistic individuals without intellectual disability. They are thought to impact negatively on functionality, social interrelations and emotional well-being, although this relationship is under-explored in the literature. The personal accounts of autistic children…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Early Adolescents
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Fletcher-Watson, Sue; Adams, Jon; Brook, Kabie; Charman, Tony; Crane, Laura; Cusack, James; Leekam, Susan; Milton, Damian; Parr, Jeremy R.; Pellicano, Elizabeth – Autism: The International Journal of Research and Practice, 2019
Participatory research methods connect researchers with relevant communities to achieve shared goals. These methods can deliver results that are relevant to people's lives and thus likely to have a positive impact. In the context of a large and growing body of autism research, with continued poor implementation, and some evidence of community…
Descriptors: Autism, Communities of Practice, Participatory Research, Empathy