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Rios, Kristina; Burke, Meghan M.; Aleman-Tovar, Janeth – Journal of Autism and Developmental Disorders, 2021
Family-professional partnership is an essential component of the special education process for children with intellectual and/or developmental disabilities (IDD), including autism spectrum disorder (ASD). Latinx families face systemic barriers when participating in educational decision-making for their children with IDD. Few studies have examined…
Descriptors: Special Education, Hispanic American Students, Family Programs, Autism
Shamash, Emily R.; Hinman, Jocelyn A. – Early Childhood Education Journal, 2022
Research and practice emphasize the importance of family involvement in early intervention for children with autism spectrum disorder (ASD). However, in order to address the unique and diverse challenges of families, support and resources may need to be prescribed on a case-by-case basis. This article suggests ways early intervention programs can…
Descriptors: Child Caregivers, Young Children, Parents, Stress Variables
Myers, Lynnea; Karp, Sharon M.; Dietrich, Mary S.; Looman, Wendy S.; Lutenbacher, Melanie – Journal of Autism and Developmental Disorders, 2021
Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures.…
Descriptors: Autism, Pervasive Developmental Disorders, Parent Attitudes, Family Programs
Coleman, Heather; Hume, Kara; Fanning, Leslie; Scott, Samantha – Journal of Early Intervention, 2022
Many autism-focused early intervention (EI) models have not yet been adopted by community-based providers in rural settings due to fit and feasibility when working within the Part C model. Family Implemented TEACCH for Toddlers (FITT, based on the University of North Carolina TEACCH Autism Program) is a research-based, Part-C compatible, EI model…
Descriptors: Autism, Pervasive Developmental Disorders, Infants, Toddlers
Rochyadi, Endang; Wulandari, Rona; Manar, Mayasari; Sunanda, Endun; Yuliana, Yopi – Education and Information Technologies, 2020
ASD children experience different development with children in general, so that requires special services to optimize children's development, one of the factors that greatly contributes to determining child development is the family environment in which children live and develop. In certain places, parents of ASD children have not yet realized and…
Descriptors: Autism, Pervasive Developmental Disorders, Intervention, Parents
Driscoll, Katherine; Schonberg, Michael; Stark, Melanie Farkas; Carter, Alice S.; Hirshfeld-Becker, Dina – Journal of Autism and Developmental Disorders, 2020
To address the paucity of cognitive-behavioral therapy (CBT) protocols available to treat anxiety in preschoolers with ASD, we piloted a family-centered CBT protocol in a series of 16 children aged 3-7 years with ASD and anxiety disorders and explored its feasibility and efficacy. Children were assessed at baseline, post-treatment (PT), and…
Descriptors: Family Programs, Cognitive Restructuring, Behavior Modification, Preschool Children
Zakirova Engstrand, Rano; Roll-Pettersson, Lise; Westling Allodi, Mara; Hirvikoski, Tatja – Journal of Autism and Developmental Disorders, 2020
Little is known about needs of grandparents of young children with autism in family and community settings. This study investigated perceived needs of grandparents of preschool-aged children diagnosed with ASD in the cultural context of Sweden. Participants were 120 grandparents of children enrolled into autism intervention programs provided by…
Descriptors: Grandparents, Needs, Autism, Pervasive Developmental Disorders
Adams, Dawn; Keen, Deb; Heussler, Helen; Wicks, Rachelle; Roberts, Jacqueline – Infants and Young Children, 2019
Early childhood intervention (ECI) services for children on the autism spectrum commonly espouse a family-centered approach but outcomes studies often focus solely upon the child. Mothers of 96 children on the spectrum (aged 4-5 years) completed a measure of access to ECI and the Family Outcomes Survey--Revised. Family outcomes after ECI were…
Descriptors: Foreign Countries, Early Intervention, Autism, Pervasive Developmental Disorders
Turner-Brown, Lauren; Hume, Kara; Boyd, Brian A.; Kainz, Kirsten – Journal of Autism and Developmental Disorders, 2019
This study examined the effects of an intervention to support parents and promote skill development in newly diagnosed toddlers with ASD. Participants included 50 children with ASD under 3 and their parents who were randomly assigned to participate in a 6-month intervention, Family Implemented TEACCH for Toddlers (FITT) or 6 months of community…
Descriptors: Intervention, Autism, Pervasive Developmental Disorders, Toddlers
Eskow, Karen Goldrich; Summers, Jean Ann – Journal of Applied Research in Intellectual Disabilities, 2019
Background: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods: This study used qualitative research methods to explore parent perspectives about…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Access to Health Care
Young, Alys; Ferguson-Coleman, Emma; Wright, Barry; Le Couteur, Ann – Journal of Deaf Studies and Deaf Education, 2019
The co-occurrence of childhood deafness and autism raises complex challenges for diagnosis and family support. In this article, we explore with hearing and Deaf parents their observations of the interaction between deafness and autism and identify how the intersections of deafness and autism are conceptualized in everyday life. Eight parents…
Descriptors: Autism, Pervasive Developmental Disorders, Parent Attitudes, Deafness
Kuhn, Jocelyn; Szidon, Kate; Kraemer, Bonnie; Steinbrenner, Jessica R.; Tomaszewski, Brianne; Hume, Kara; DaWalt, Leann – Autism: The International Journal of Research and Practice, 2022
Transitioning Together is a multi-family intervention designed to support families of adolescents on the autism spectrum as they prepare for the transition to adulthood. Questions remain regarding its wide-scale adoption and implementation in real-world settings such as high schools. We examined student, teacher, and school-level facilitators and…
Descriptors: Family Programs, Problem Solving, Evidence Based Practice, Coaching (Performance)
Broder-Fingert, Sarabeth; Qin, Sarah; Goupil, Julia; Rosenberg, Jessica; Augustyn, Marilyn; Blum, Nate; Bennett, Amanda; Weitzman, Carol; Guevara, James P.; Fenick, Ada; Silverstein, Michael; Feinberg, Emily – Autism: The International Journal of Research and Practice, 2019
There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Family Programs
Burke, Meghan M.; Waitz-Kudla, Sydney N.; Rabideau, Carol; Taylor, Julie Lounds; Hodapp, Robert M. – Autism: The International Journal of Research and Practice, 2019
The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Barriers
Mandak, Kelsey; Light, Janice – Journal of Autism and Developmental Disorders, 2018
Although family-centered services have long been discussed as essential in providing successful services to families of children with autism spectrum disorder (ASD), ideal implementation is often lacking. This study aimed to increase understanding of how families with children with ASD and limited speech receive services from speech-language…
Descriptors: Pervasive Developmental Disorders, Speech Language Pathology, Speech Impairments, Autism

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