ERIC Number: EJ1487713
Record Type: Journal
Publication Date: 2025-Sep
Pages: 9
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: 2025-10-20
Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden
Tommie Forslund1,2; Sandra Melander1; Lydia Springer1; Laila Dahlström Stolpe1; Karin Jöreskog1
Journal of Applied Research in Intellectual Disabilities, v38 n5 e70136 2025
Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with intellectual disability through support to the practitioners who support the families. Method: SUF has now existed for 20 years and, in this brief report, we describe SUF's organisation and methods: knowledge dissemination, consultations, development and implementation of adapted methods, research, and support of inter-agency cooperation. Results: We describe selected results, including research, development projects, and an external review of SUFs' work. Conclusions: We reflect on factors that have been important in developing and maintaining adapted support. We emphasise working together with practitioners--grounded in their needs, opportunities and constraints--and to simultaneously address both parents' and children's rights and needs.
Descriptors: Parents with Disabilities, Intellectual Disability, Resources, Allied Health Personnel, Foreign Countries, Services, Child Rearing, Agency Cooperation, Family Needs
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us
Publication Type: Journal Articles; Reports - Descriptive
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Sweden
Grant or Contract Numbers: N/A
Author Affiliations: 1SUF Resource Center, Region Uppsala, Uppsala, Sweden; 2Department of Social Work, Uppsala University, Uppsala, Sweden

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