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Guler, Jessy; Stewart, Kearsley A.; de Vries, Petrus J.; Seris, Noleen; Shabalala, Nokuthula; Franz, Lauren – Autism: The International Journal of Research and Practice, 2023
Most autism research has been conducted in high-income countries, with participants typically from White, upper-middle-income families. Given the disparities experienced by autistic individuals living in underserved communities globally, there is a critical need for research to include individuals from culturally, linguistically,…
Descriptors: Autism Spectrum Disorders, Foreign Countries, Research Methodology, Recruitment
Fang, Zuyi; Lachman, Jamie M.; Zhang, Cheng; Qiao, Dongping; Barlow, Jane – Autism: The International Journal of Research and Practice, 2022
Although the evidence of parent training programmes for families of autistic children has continued to grow, little is known about the experiences and perceptions of key stakeholders, especially in low- and middle-income countries. This qualitative study was part of a larger real-world evaluation of a short-term intensive parent training programme…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parent Education, Program Effectiveness
Kathleen Simcoe; J. Alacia Stainbrook; Kate T. Chazin; Elaina Schnelle; Liliana Wagner; Madison Hooper; A. Pablo Juárez; Zachary Warren – Autism: The International Journal of Research and Practice, 2025
Despite the clear efficacy and appeal of naturalistic developmental behavioral interventions for families of young children, they are often difficult for families to access due to the limited availability of trained service providers. In recent years, telehealth has emerged as an effective tool for overcoming issues related to access, especially…
Descriptors: Coaching (Performance), Early Intervention, Telecommunications, Family Needs
Lewis, Ericka M.; Dababnah, Sarah; Hollie, Kelley R.; Kim, Irang; Wang, Yao; Shaia, Wendy E. – Autism: The International Journal of Research and Practice, 2022
There is a paucity of studies that center on the lived experiences of Black families raising autistic children, and major gaps remain in our understanding of how parents of Black autistic children cope with stressors. Drawing from the Black family stress and coping model, this mixed-methods study explored coping strategies utilized by parents of…
Descriptors: Autism Spectrum Disorders, Parent Attitudes, Child Rearing, Stress Variables
Karpur, Arun; Vasudevan, Vijay; Lello, Angela; Frazier, Thomas W; Shih, Andy – Autism: The International Journal of Research and Practice, 2021
Individuals with autism spectrum disorder and co-occurring intellectual disabilities experience substantial challenges in accessing needed supports. This research aimed to understand the prevalence and factors associated with food insecurity among families of children with autism spectrum disorder and co-occurring intellectual disabilities.…
Descriptors: Hunger, Autism, Pervasive Developmental Disorders, Intellectual Disability
Arnell, Susann; Jerlinder, Kajsa; Lundqvist, Lars-Olov – Autism: The International Journal of Research and Practice, 2020
The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits, and they possess important knowledge about the adolescents' needs when it comes to enhancing participation in physical activity. But promoting healthy physical activity habits in adolescents can be difficult.…
Descriptors: Autism, Pervasive Developmental Disorders, Parent Attitudes, Physical Activity Level
Smith, Sarah L.; McQuade, Hannah B. – Autism: The International Journal of Research and Practice, 2021
Families provide a critical context for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can flourish. For families raising a child with autism, the chronic, intense nature of everyday life affects family health in part due to increased parental stress and…
Descriptors: Autism, Pervasive Developmental Disorders, Family (Sociological Unit), Health
Habayeb, Serene; Al-Harahsheh, Sanaa; Ratto, Allison; Verbalis, Alyssa; Pugliese, Cara; Nadwodny, Nicole; Al-Meer, Feras; El-Akoum, Maha – Autism: The International Journal of Research and Practice, 2022
Autism services in Qatar are expanding rapidly, but focus predominantly on young children. The shortage of qualified autism providers and minimal opportunities for autistic youth to participate in school, work, and community have led to a growing population of autistic youth transitioning to adulthood with substantial unmet needs for behavioral…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Respite Care
Galpin, James; Barratt, Penny; Ashcroft, Edward; Greathead, Scot; Kenny, Lorcan; Pellicano, Elizabeth – Autism: The International Journal of Research and Practice, 2018
Much research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support…
Descriptors: Family Needs, Autism, Pervasive Developmental Disorders, Children
Ratto, Allison B.; Anthony, Bruno J.; Pugliese, Cara; Mendez, Rocio; Safer-Lichtenstein, Jonathan; Dudley, Katerina M.; Kahn, Nicole F.; Kenworthy, Lauren; Biel, Matthew; Martucci, Jillian L.; Anthony, Laura G. – Autism: The International Journal of Research and Practice, 2017
Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to…
Descriptors: Low Income Groups, Minority Groups, At Risk Persons, Access to Health Care
Hodgetts, Sandra; Zwaigenbaum, Lonnie; Nicholas, David – Autism: The International Journal of Research and Practice, 2015
Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families' needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders. Methods:…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Needs Assessment
Peer reviewedWhitaker, Philip – Autism: The International Journal of Research and Practice, 2002
This paper describes a British local education authority project to provide support for the families of children with autistic spectrum disorders. Parents particularly valued the following: input of the support worker; support to "make sense" of their child's development; practical strategies for facilitating language and interactive…
Descriptors: Autism, Early Childhood Education, Family Needs, Foreign Countries

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