Family navigator programs are becoming increasingly common among families of children with autism. Yet, it is unclear how family navigators are developed; by exploring the input of families of children with autism, such programs can be responsive to family needs. In this study, 12 parents of autistic children from low-resourced communities were…

The District of Columbia boasts the greatest access to public prekindergarten for 3- and 4-year-old children in the United States, offering a full-day, school-year universal preschool program. High participation rates indicate that public investments in prekindergarten are supporting working families and helping DC's children thrive. However,…

Background: To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS). Method: Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales. Results:…

Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with…

"Raising a Nation" offers a new framework for thinking about a comprehensive, inclusive child care system: one that supports families in all their diversity, whether they want to utilize a licensed child care program, family member, or have a parent as the primary child care provider. Thanks to a history of neglect, child care in America…

This study aims to describe in depth the life experiences of parents with gifted children within the framework of culture-specific concepts, structures, and processes and to test the effectiveness of a psychoeducation model developed in response to the emerging need. The study was designed as a mixed-method research model. The structural…

Introduction: Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on…

The purpose of this qualitative descriptive study was to seek descriptions from people included in, and excluded from, participating on transition teams for adolescents with intellectual disabilities entering adulthood in New Jersey. The theoretical framework included two theories to support this research. Faludi's Procedural Planning Theory…

Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…

There exists a huge chasm between child care options available to families whose children are typically developing and those whose children have identified disabilities or developmental delays. The intersecting identities of race, disability status, and socioeconomic status compound to make the current child care options inadequate to meet the…

Background and Aims: Self-determination related skills are central for achieving a life of quality for people with intellectual disability and develop as the person interacts with his/her contexts, such as home. As such, families are crucial agents in supporting the self-determination of their children with intellectual disability, although to…

This article presents findings from research focusing on parent/carer views of support received for school non-attendance. Research has consistently demonstrated poor short-term and long-term outcomes for children who experience school non-attendance and there is growing concern in the UK, and across the world, for children who miss education.…

Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…

Community schools have shown promising gains for students in the areas of student attendance, academic achievement, student behavior, and school climate. However, little scholarship has addressed the experiences of these schools and their stakeholders during the COVID-19 pandemic. To determine how community school programs were impacted by the…

Background: Moving out of the family home is a key transition for people with intellectual disabilities and their families. Yet there has been little research about parents' experiences of planning the move of their young adult offspring to residential settings offering 24-hour support. Method: Interviews were conducted with eleven parents whose…