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Navigating Uncertainty: Taking Methodological Cues from Relatives and Care Professionals for Researching the Perspectives of People with Profound Intellectual and Multiple Disabilities
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Femmianne Bredewold; Simon van der Weele – Journal of Intellectual & Developmental Disability, 2025
Background: Researching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity. Aims: This study aimed to develop methodological cues for researchers studying the perspectives…
Descriptors: Research Methodology, Cues, Family Influence, Caregivers
Quality of Life of Persons with Profound Intellectual and Multiple Disabilities: A Narrative Literature Review of Concepts, Assessment Methods and Assessors
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Nieuwenhuijse, Appolonia M.; Willems, Dick L.; van Goudoever, Johannes B.; Echteld, Michael A.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2019
Background: The objective of this study was to provide an overview of concepts, methods of assessment and assessors in empirical studies on quality of life (QoL) of persons with Profound Intellectual and Multiple Disabilities (PIMD). Method: A narrative literature review was conducted by searching electronic databases until December 2016, and the…
Descriptors: Quality of Life, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods