Background: We now have sufficient evidence demonstrating inequalities in specific avoidable causes of death for adults with intellectual disability compared to their peers without intellectual disability. Apart from COVID-19, the largest differentials that disadvantage people with intellectual disability are in relation to pneumonia, aspiration…

A retrospective data analysis using 2004-2014 Healthcare Cost and Utilization Project Nationwide Inpatient Sample was conducted to examine in-hospital mortality among adults with autism spectrum disorders in the United States compared to individuals in the general population. We modeled logistic regressions to compare inpatient hospital mortality…

The primary objective of this paper is to present recent advances in our understanding of epilepsy and to discuss the implications of these advances to optimise health and social care supports for people with epilepsy and intellectual disability (ID). The high prevalence and impact of epilepsy among people with ID has been well described.…

Issues of positionality of Black African researchers researching African issues is seldom discussed in methodological literature. In this article, I reflect from an African perspective on issues of insider/outsider positionalities and of serendipity and unexpectedness during my fieldwork which are areas often dominated by writing from the global…

Background: People with intellectual disability (ID) and epilepsy are more likely to die prematurely than the general population. A significant number of deaths in people with epilepsy may be potentially preventable through better seizure control, regular monitoring and raising awareness among patients and carers. The aim of this project was to…

As the life expectancy of people with intellectual disability (ID) increases, it is becoming necessary to understand factors affecting survival. However, predictors that are typically assessed among healthy people have not been examined. Predictors of all-cause mortality, including blood, urine, anthropometry, and nutritional indices, were…

To provide evidence of whether seizure clustering is associated with drug resistance and increased mortality in childhood-onset epilepsy, a prospective, long-term population-based study was performed. One hundred and twenty patients who had been followed since disease onset (average age 37.0 years, SD 7.1, median 40.0, range 11-42; incident cases)…

This study compared mortality among Danish citizens with autism spectrum disorders (ASDs) with that of the general population. A clinical cohort of 341 Danish individuals with variants of ASD, previously followed over the period 1960-93, now on average 43 years of age, were updated with respect to mortality and causes of death. Standardized…

Examination of the prevalence of epilepsy and health service utilization in 1,595 people with intellectual disabilities in Wales found 16.1% had epilepsy. Standardized activity ratios were 3.07, 2.03, and 3.09 for inpatients, outpatients, and accident and emergency, respectively. Patients with intellectual disability and co-existing epilepsy used…