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Sien Vandesande; Evy Meys; Bea Maes – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives…
Descriptors: Siblings, Children, Adolescents, Emotional Response
Golnaz Ghaderi; Virginie Cobigo – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Understanding the cognitive processes of individuals with intellectual disabilities in financially abusive situations is critical to develop effective prevention strategies. Aims: This study investigated how persons with intellectual disabilities define and analyse financially abusive situations, and how they would feel and act in…
Descriptors: Intellectual Disability, Cognitive Processes, Prevention, Money Management
Pendl, Dominik; Glatz, Mathieu; Gasteiger-Klicpera, Barbara – Journal of Applied Research in Intellectual Disabilities, 2024
Background: In Austria, due to its history, only relatively little research on the topic of intellectual disabilities and dementia has been conducted to date. The present study thus aims to explore the challenges and tasks currently facing formal caregivers, together with assessing their wishes for further development. Methods: Ten semi-structured…
Descriptors: Foreign Countries, Caregivers, Intellectual Disability, Dementia
Faught, Gayle G.; Phillips, B. Allyson; Conners, Frances A. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Parenting styles mediate parental stress and child emotions in families of typically developing (TD) children. Our main aim was to study these relations in families of children with Down syndrome (DS), who in past research reported increased parental stress and permissive parenting. Method: Our sample included 100 parents of children…
Descriptors: Parenting Styles, Anxiety, Psychological Patterns, Down Syndrome
Peters, Vincent J. T.; Bok, Levinus A.; de Beer, Lieke; Rooij, Joyce J. M.; Meijboom, Bert R.; Bunt, Jan Erik H. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Transitioning from paediatric medical care to adult care is a challenging process for children, parents and healthcare professionals. The aim of this study was to explore the experiences, concerns and needs of parents of children with Down syndrome and of professionals regarding this transition. Method: A qualitative study was…
Descriptors: Down Syndrome, Parents, Health Personnel, Parent Attitudes
Ariel Schwartz; Nikola Davern; Alix Herer; Micah Peace-Urquilla; Jesse Corey; Dheva Muthuramalingam; Neha Vallabhaneni – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response. Methods: Twelve…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Mental Health
Stancliffe, Roger J.; Wiese, Michele Y.; Read, Sue; Jeltes, Gail; Barton, Rebecca; Clayton, Josephine M. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Caregivers often avoid involving people with intellectual disability in end-of-life discussions and activities. One reason is fear that the person may become upset or psychologically harmed. Methods: Pre and post a 6-month intervention about end of life, we assessed depression, anxiety, and fear of death among intervention (n = 24) and…
Descriptors: Adults, Intellectual Disability, Emotional Response, Discussion
Burton, Holly; Gordon, Kim – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Government restrictions enforced globally in response to COVID-19 necessitated changes to the delivery of mental health services, with many psychology professionals (PPs) forced to transfer their face-to-face practice to virtual means (telephone/video therapy) overnight. This review explores what is known about the experiences of PPs…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Mental Health
Leane, Máire – Journal of Applied Research in Intellectual Disabilities, 2020
Background: In families with a member with a developmental disability (DD), future care planning is limited (Brennan et al., Journal of Applied Research in Intellectual Disabilities, 31, 2018, 226; Bowey and McGlaughlin, British Journal of Social Work, 31, 2007, 39; Davys et al., Journal of Intellectual Disability, 14, 2010, 167; Davys et al.,…
Descriptors: Developmental Disabilities, Siblings, Family Role, Planning
Embregts, Petri J. C. M.; Tournier, Tess; Frielink, Noud – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present study aimed to explore the experiences and needs of direct support staff during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Overall, eleven direct support staff were recruited from five intellectual disability services to participate in this descriptive qualitative study. They recorded 34 audio…
Descriptors: Foreign Countries, COVID-19, Pandemics, Intellectual Disability
Fernández-Ávalos, María Inmaculada; Pérez-Marfil, María Nieves; Ferrer-Cascales, Rosario; Cruz-Quintana, Francisco; Fernández-Alcántara, Manuel – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The diagnosis of intellectual disability in children can produce complex grief-related feelings in their parents. Previous studies have focused on the moment of the diagnosis or the early life of the children, and little research has been conducted on their feelings of grief in adulthood. The objective was to analyse the process of…
Descriptors: Intellectual Disability, Children, Parent Attitudes, Grief
Gore, Nick; Bradshaw, Jill; Hastings, Richard; Sweeney, Joanne; Austin, Debbie – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Early Positive Approaches to Support (E-PAtS) is a co-produced and co-facilitated group programme that aims to provide early years support to family caregivers of children with Intellectual and Developmental Disabilities. Method: Thirty-five caregivers who had attended E-PAtS groups took part in individual interviews or focus groups.…
Descriptors: Intellectual Disability, Developmental Disabilities, Emotional Response, Coping
Scior, Katrina; Cooper, Rebecca; Fenn, Kristina; Poole, Laurie; Colman, Sophie; Ali, Afia; Baum, Sandra; Crabtree, Jason; Doswell, Sophie; Jahoda, Andrew; Hastings, Richard; Richardson, Lisa – Journal of Applied Research in Intellectual Disabilities, 2022
Background: People with intellectual disabilities are at risk of experiencing stigma and require the skills and confidence to deal with stigma in their daily lives. Method: Development and piloting of a 5-session manualised psychosocial group intervention designed to increase the capacity of people with intellectual disabilities aged 16+ to manage…
Descriptors: Intellectual Disability, Social Bias, Attitudes toward Disabilities, Coping
Coleman, Jeanine; Thompson, Talia; Riley, Karen; Allen, Korrie; Michalak, Claire; Shields, Rebecca; Berry-Kravis, Elizabeth; Hessl, David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Parenting children and young adults with intellectual disabilities, including individuals with fragile X syndrome and Down syndrome, is challenging, joyful, and complicated. Exploring how parents talk about their children, and the quality of the parent/child relationship can provide insight into the home environment and interactional…
Descriptors: Genetic Disorders, Intellectual Disability, Congenital Impairments, Parents
Murray, George; McKenzie, Karen; Murray, Aja; Whelan, Kathryn; Cossar, Jill; Murray, Kara; Scotland, Jennifer – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Research suggests that having relevant contextual information can help increase the accuracy of emotion recognition in typically developing (TD) individuals and adults with an intellectual disability. The impact of context on the emotion recognition of children with intellectual disability is unknown. Method: Emotion recognition tasks,…
Descriptors: Context Effect, Emotional Response, Intellectual Disability, Children