Studied the construct validity for scores on a measure of psychological empowerment, the Psychological Empowerment Scale, for parents of children with a disability. Results of correlational analyses and group discrimination analyses of responses of 293 parents in 3 family support programs provide evidence of the convergent and discriminant…

The record of the 1985 hearing addresses policy issues concerning families of disabled children. Statements are presented from parents of severely disabled children, educators, researchers, agency personnel, and disabled consumers. Topics addressed include sources of family stress, need for financial and respite services, the effects on other…

The article describes a Netherlands model for support and assistance to families of handicapped children. "Practical Help at Home" is an outgrowth of the Parents' Initiative Movement and relies on volunteers to provide a range of services including respite and training. (CL)

The family dimensions of 24 Individualized Family Service Plans written for infants/toddlers with handicaps and their families were examined to determine the presence of key legislative requirements, the domains of family goals, structural dimensions, level of parent involvement, and time parameters for goal attainment. Issues surrounding family…

This paper discusses the development of an overall network of respite care services in the Federal Republic of Germany, the need for respite care services, efforts of a national organization called Lebenshilfe, evolution of the concept of respite care, and future tasks. (Author/JDD)

This annotated bibliography provides bibliographic information and non-evaluative annotations of about 46 publications based on research with families of children with disabilities and authored by staff members of the Beach Center on Families and Disability in Lawrence, Kansas. Citations are organized into sections on book chapters, hearings and…

The project, Extending Family Resources, was designed to assess the impact on 14 families of raising children with handicapping conditions and to implement a model program to reduce obstacles facing those families. The model emphasized incorporating under-involved relatives, friends, and neighbors into the family's support network. Performance…

The purpose of this directory is to facilitate networking and collaboration among those caring for or providing support services to children with chronic illness or disabling conditions. It is hoped that this directory will enable parents to identify other parents who share their interests and concerns, as well as assist professionals in locating…

The document provides summaries of 53 programs from around the country demonstrating innovative approaches to identifying needs and developing and delivering services and materials to families. Chapters are organized according to broad themes which underlie their programs' design. Chapter 1 (10 programs) examines programs which explore informal…

Advances the view that the family is an important social service and that the task of professionals is no longer to provide services that either totally or partly substitute for the family, but to discover what help families would like. Discusses implications for policy and for care of handicapped persons. (BR)

The involvement of the Dunham family and their physically disabled son with the Family Challenge Program (Westfield, Massachusetts) is outlined with particular attention to how the family relationships (especially between father and son) have grown closer through improved communication, cooperation, and trust, thereby creating a partnership. (JMM)

Significant evaluation findings for a respite care program include the following: (1) training sessions enhanced workers' knowledge of disabilities, (2) families with recently disabled children received more benefits from respite services than families with long-term disabled children, (3) services provided parents emotional relief, and (4)…

Analysis of data from 270 families participating in Michigan's "Early On" (Part H of the Individuals with Disabilities Education Act) program suggests two paths for empowering families: (1) implementation of program components via a family-centered framework or (2) family-centered delivery to build a family support network. (Author/DB)

Surveys reactions and preferences related to a support program for siblings (N=40) of children with disabilities. Results identified the benefits participants received from the program and the different components participants preferred, such as favored recreational activities. Suggests the clinical utility of the program for school personnel…

Raising a child with disabilities impacts the ability of parents to participate in life situations. This paper describes the development of a new instrument, Life Participation for Parents, to measure outcomes of pediatric therapy on parental participation. Items were reviewed by six occupational therapists with experience in pediatrics and…