Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…

Estimates show that one in six children aged three through 17 in the United States have one or more developmental disabilities. Many early childhood education programs aim to improve early identification of children with developmental disabilities and increase family engagement, specifically Head Start and Early Head Start programs. The present…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

This study assessed needs and outcomes for people with developmental disability (DD) to understand the socioeconomic status of this group prior to implementation of the Accessible Canada Act in June 2019. The 2017 Canadian Survey on Disability (CSD) was used to analyze data for a sample of individuals with self-reported disability. Data related to…

Emerging research tests the impact of United States Medicaid home and community-based (HCBS) waiver policy on outcomes for people with intellectual and developmental disabilities; however, this body of work has yet to be synthesized. We conducted a scoping review to establish what is known about the impact of Medicaid HCBS policy on the lives of…

Challenges in collecting comprehensive health surveillance data on people with intellectual and developmental disabilities (IDD) are numerous. A number of important issues and strategies are discussed in the articles contained in this special issue of "Intellectual and Developmental Disabilities." In this article, we focus on the…

Early intervention services are an important federally funded program for families with children under three years of age who may be diagnosed with or are at risk of developmental delay or disability. The program's impacts can be profound: Early intervention helps strengthen cognitive, motor, and language skills; reduces the likelihood of…

This project sought to identify Medicaid members with intellectual and developmental disabilities (IDD) in five states (Delaware, Iowa, Massachusetts, New York, and South Carolina) to develop a cohort for subsequent analyses of medical conditions and service utilization. We estimated that over 300,000 Medicaid members in these states had IDD. All…

The DEC Recommended Practices provide guidance to families and professionals about the most effective ways to improve learning outcomes and promote development of young children, birth through age 5, who have, or are at-risk for, developmental delays or disabilities. "Teaming and Collaboration: Building and Sustaining Partnerships" is…

This resource was prepared in response to a request for examples of developmental screening activities in Early Learning Challenge (ELC) States. This information will be helpful to States as they consider how to identify and address health, behavioral, and developmental needs of children with high needs. To address this request, ELC TA reviewed…

This "2018-2019 Interagency Autism Coordinating Committee (IACC) Strategic Plan Update" is the work of the IACC membership that was appointed under the Autism CARES Act of 2014. The Committee agreed that the "2016-2017 IACC Strategic Plan" reflected a comprehensive review of the state of the field and provided a set of 23 new…

This article explores social policy developments in the arena of intellectual and developmental disabilities. It begins by summarizing the challenges facing persons with intellectual disabilities and their caregivers in 1945. Families depended on a patchwork of over-crowded and under-funded large state institutions. Children with intellectual…

Narrative skills that are important for preschoolers include retelling stories, telling personal stories, and answering questions about stories. Narrative abilities form the foundation of reading comprehension. The purpose of this study was to investigate the effect of an individually delivered language intervention on the narrative skills of…

Iowa established the Statewide Voluntary Preschool Program (SVPP) in 2007. It has grown to be the largest--although not the only--public preschool program in the state. It is available without regard to family income. Iowa also supports preschool for low-income children through its Shared Visions program and Early Childhood Iowa, the…

Families and individuals with developmental disabilities are leading the way in establishing innovative housing options. They are creating homes with supportive services more tailored to specific individual needs. They are developing homes with physical environments that feel more like home, or are more therapeutic. And they are taking steps…