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Liezl Schlebusch; Nola Chambers; David Rosenstein; Petro Erasmus; Petrus J. de Vries – Autism: The International Journal of Research and Practice, 2024
Caring for children with developmental delays or disabilities places significant stress on caregivers, which is often exacerbated in low-resource settings. The World Health Organization developed a caregiver skills training for families of children with developmental delays or disabilities, which includes a three-session caregiver well-being…
Descriptors: Foreign Countries, Caregivers, Well Being, Children
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Daniel Sutherland; Samantha Flynn; Joanna Griffin; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8-13. We investigated experiences of Positive Family…
Descriptors: Developmental Disabilities, Children, Early Adolescents, Family Environment
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Orly Ganany-Dagan – Journal of Intellectual & Developmental Disability, 2025
Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed…
Descriptors: Intellectual Disability, Developmental Disabilities, Inclusion, Foreign Countries
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Burke, Meghan M.; Goldman, Samantha E.; Li, Chak – Intellectual and Developmental Disabilities, 2023
Special education advocacy programs support families to secure services for their children with intellectual and developmental disabilities. Although research demonstrates the efficacy of one such program (the Volunteer Advocacy Project), its effectiveness when replicated by others is unknown. Replication research is critical to ensure that…
Descriptors: Special Education, Advocacy, Replication (Evaluation), Educational Change
Tiffany Lee – ProQuest LLC, 2022
Outdoor play is a crucial in supporting child development, resiliency, social skills, creative thinking, adaptability, family growth, and family engagement. Unfortunately, children are spending less time outside because of technology, parent fears, and other factors. Parents who have a child with a disability have even more challenges when it…
Descriptors: Early Intervention, Infants, Toddlers, Developmental Delays
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Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
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Durand, V. Mark – Research and Practice for Persons with Severe Disabilities, 2021
Over the past several decades, we have developed quality behavioral assessments and interventions for challenging behaviors among individuals with a variety of severe developmental and cognitive disorders. These assessments and interventions have been used to educate family members on how to understand and intervene with these behaviors at home…
Descriptors: Behavior Problems, Behavior Disorders, Functional Behavioral Assessment, Developmental Disabilities
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Rios, Kristina; Burke, Meghan M.; Aleman-Tovar, Janeth – Journal of Autism and Developmental Disorders, 2021
Family-professional partnership is an essential component of the special education process for children with intellectual and/or developmental disabilities (IDD), including autism spectrum disorder (ASD). Latinx families face systemic barriers when participating in educational decision-making for their children with IDD. Few studies have examined…
Descriptors: Special Education, Hispanic American Students, Family Programs, Autism
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Gotto, George S.; Reynolds, Michelle C.; Palmer, Susan B.; Chiang, Danielle F. – Intellectual and Developmental Disabilities, 2019
Supporting families who have family members with intellectual and developmental disabilities (IDD) as they move through life is a critical need (Reynolds, Palmer, & Gotto, 2018). The phrase, "supporting families," juxtaposes the typical family support paradigm in response to the ongoing shrinkage of federal and state dollars and the…
Descriptors: Family Programs, Caregivers, Services, Intellectual Disability
Kramer, John; Bose, Jennifer; Shepard, John – Institute for Community Inclusion, 2017
Families can be the most influential factor in successful employment and life planning for people with intellectual and developmental disabilities (IDD), often leading them on the path to employment by serving as role models for work ethic and behavior. Yet families often lack the knowledge to move employment from an abstract belief to a real job.…
Descriptors: Intellectual Disability, Developmental Disabilities, Family Programs, Family Involvement
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Tann, Cally J.; Kohli-Lynch, Maya; Nalugya, Ruth; Sadoo, Samantha; Martin, Karen; Lassman, Rachel; Nanyunja, Carol; Musoke, Margaret; Sewagaba, Margaret; Nampijja, Margaret; Seeley, Janet; Webb, Emily L. – Infants and Young Children, 2021
Global attention on early child development, inclusive of those with disability, has the potential to translate into improved action for the millions of children with developmental disability living in low- and middle-income countries. Nurturing care is crucial for all children, arguably even more so for children with developmental disability. A…
Descriptors: Early Intervention, Developmental Disabilities, Foreign Countries, Neonates
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Nawalana, Anna; Kózka, Maria; Majda, Anna – International Journal of Developmental Disabilities, 2020
Objectives: Care efficiency of family can be determined by many factors such as mental and physical health status of family members and their socioeconomic situation. Raising children with disabilities is a burdening and stressful situation for their caregivers. This article examines determinants of care efficiency in a group of Polish parents…
Descriptors: Case Studies, Developmental Disabilities, Stress Variables, Socioeconomic Status
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Zuna, Nina; Gràcia, Marta; Haring, Samuel H.; Aguilar, Jeannie M. – Journal of Intellectual & Developmental Disability, 2016
Background: This paper reports results from a study examining disability-related services at the family level. Method: We used descriptive statistics to examine (a) the types of disability-related family services families used, (b) how well family services met their needs, (c) the types of family services needed but not received, and (d) families'…
Descriptors: Family Programs, Family Attitudes, Autism, Pervasive Developmental Disorders
Van Nest, Sandra – ZERO TO THREE, 2017
Mental health therapists use strategies such as rupture and repair, unconditional positive regard, and managing countertransference to help their clients achieve therapeutic goals. These tools work across disciplines. Teaching parents to use therapeutic techniques increases opportunities to enhance their child's development and builds compliance…
Descriptors: Family Involvement, Early Intervention, Child Development, Therapy
Schraml-Block, Kristen; Ostrosky, Michaelene M. – ZERO TO THREE, 2018
Early interventionists interact and partner with a multitude of families, all with unique strengths, backgrounds, and circumstances. During partnerships with family members, professionals may encounter interactions and relationships that they perceive as challenging or imbalanced. Skilled Dialogue is a framework which emphasizes the use of…
Descriptors: Early Intervention, Family School Relationship, Partnerships in Education, Early Childhood Education
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