Social participation has been linked to healthy aging, yet little is known about social participation during extended periods of time for adults with intellectual and developmental disabilities. The social participation of 777 adults with intellectual and developmental disabilities (aged 18-77 years), during a 4-year period, was examined.…

Internationally, parents of children with intellectual and developmental disabilities have historically engaged in advocacy leading to compulsory education for their children. However, few parents have reported civic engagement. Although empowerment is related to parent advocacy, it is unclear whether empowerment relates to civic engagement. Thus,…

Changes in the field of intellectual and developmental disabilities (IDD) over the last 5 decades has resulted in the emergence of the shared citizenship paradigm. This paradigm is currently guiding the development of IDD-related policies and practices, and providing a framework for application, research-based inquiry, and evaluation. A shared…

In the last decade, international efforts have been focused on public engagement, to foster public involvement in the affairs and decisions of policy-makers and scientists, in order to open a mutual sharing of knowledge, values and beliefs. Our study describes a pilot experience of public engagement in a fringe field of biomedical research which…

This study used qualitative multiple case study analysis to explore community inclusion implementation among developmental disability service providers in Massachusetts. The Americans with Disabilities Act of 1990 (and its affirmation of community inclusion in Olmstead vs. L.C., 1999) set the stage for rights-based understanding of community…

"A Blueprint for Community Inclusion Strategies for Youth with Developmental Disabilities in Washington, DC" provides a summary of comments and common themes among DC youth with disabilities and their families. This includes their top priorities, solutions to pressing issues, and ways that allies (individuals and organizations) can…

This information packet presents five readings about community participation and social networks of people with developmental disabilities and an annotated bibliography. The first paper, "Building Stronger Communities for All: Thoughts about Community Participation for People with Developmental Disabilities" (Robert Bogdan and Steven J. Taylor),…

There is a growing concern about the connection between many chemical exposures and learning and other developmental disabilities (LDD). National and local groups are developing new programs around the country that are making this connection--and taking action with regard to policy, education and research efforts. They are working towards reducing…

This monograph presents four papers which focus on the experiences of people with disabilities in terms of their personal relationships and belonging to a social network. The first three papers are authored by Zana Marie Lutfiyya. An overview article, "Reflections on Relationships between People with and without Disabilities," describes some of…

This handbook offers practical suggestions for advocates of individuals with developmental disabilities on how to: acquire basic training, recruit volunteers, influence decision makers, lend reinforcement to state and national initiatives, make and keep important contacts, and enlist new allies. Chapter titles include: "Why…

This report describes the best practices identified by eight projects in upstate New York funded to work towards increasing the number of individuals with developmental disabilities who serve in leadership roles on policy boards and planning committees of community agencies and organizations. Programs were based on the model developed by…

This booklet highlights some of the insights that five mothers of children with developmental disabilities have gained after a generation of working together to improve the lives of people with developmental disabilities in Wisconsin. It discusses civic activism, the critical importance of organized parent support, difficulties in collaborating…

Partners in Policymaking is an ongoing, federally funded empowerment and self-advocacy education program for individuals with developmental disabilities and their families in Minnesota which is being replicated in other states. A survey of 130 program graduates indicated satisfaction with the program and the presence of many active citizen…

This article discusses four necessary elements of the self-advocacy movement: gaining awareness of one's social and political situation; gaining awareness of individual strengths and potential; taking action through participation in community organizations; and having advisors collaborate with people with disabilities rather than treating them as…

This case study describes Project RESCUE (Refer, Evaluate, Support, Coordinate, Uncover, and Educate), an agency providing support to children and adults with developmental disabilities in Fulton and DeKalb counties in and around Atlanta, Georgia. Project RESCUE's mission is to assist people in four areas: (1) to identify and obtain community…