Background: Long-term care planning (LTCP) is critical for individuals with intellectual/developmental disabilities. Objectives of this study were to investigate progression through LTCP, and associations between social support and: (1) LTCP and (2) burden among family caregivers. Methods: A cross-sectional survey was distributed to caregivers of…

Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…

Co-occurring intellectual/developmental disability (IDD) and overweight/obesity (OW/OB) is an important consideration of IDD psychiatric care. The relationship between OW/OB and comorbid diagnoses of Autism Spectrum Disorder (ASD) and/or IDD remains inadequately described in existing literature. The purpose of this study is to explore these…

Individuals with disabilities do not access postsecondary education at the same rate as their peers without disabilities. This gap is unfortunate, as research shows that when students with intellectual and developmental disabilities (IDD) participate in postsecondary education, they have improved physical, social, and employment outcomes. To…

Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…

This systematic review examined 14 U.S. studies published since 2000 reporting prevalence estimates for intellectual disability (ID) or developmental disability (DD). Prevalence rates for children were between 11.0 and 13.4 per 1,000 for ID and between 45.8 and 69.9 per 1,000 for DD using data from 2010 or later. A 2015 Ohio study of adults…

The county boards of developmental disabilities in the state of Ohio have experienced significant change in vision, mission, programs, services, and funding over the last several years. In times of vast change, the ability to successfully lead an organization becomes challenging. In an effort to identify the leadership behaviors and styles of…

People with intellectual and developmental disabilities (IDD) continue to experience high rates of unemployment. Previous research suggests that including an employment goal in an individual's service plan can be a mechanism toward attaining employment, especially in a community setting. This study contributes to the understanding of the role of…

The county boards of developmental disabilities in the state of Ohio have experienced significant change in vision, mission, programs, services, and funding over the last several years. In times of vast change, the ability to successfully lead an organization becomes challenging. In an effort to identify the leadership behaviors and styles of…

As postsecondary programs grow for students with intellectual and developmental disabilities (SwIDD), there is an increased focus on program evaluation and effectiveness, specifically related to impact on employment outcomes. Ohio's Statewide Consortium (OSC) of postsecondary programs for individuals with intellectual and developmental…

Inclusive postsecondary education (IPSE) programs can provide young adults with IDD opportunities for training and experiences in continuing academic instruction, transition goals, independent living as well as employment. Parent readiness is an important aspect of having young adults embrace their increasing independence. While the prospective…

Introduction: According to the World Health Organization, sexuality education (SE) is considered a human right and aims to increase understanding, decrease abuse, unplanned pregnancies, and sexually transmitted infections. Yet, individuals with intellectual or developmental disabilities are less likely to receive or SE is primarily focused on…

Background: People with developmental disabilities experience worse health than typically developing peers. This health differential is often described in terms of health disparities, which refers to differences caused or exacerbated by social or access issues. Objective: the goal of this study was to compare the weight status and health…

An adapted alternating treatments design was used to compare the efficacy of echoic and textual prompts to teach three students with autism (ages 8-15) to ask questions related to two pre-selected topics of conversation. Participants were first required to answer questions related to the topics to determine whether accurate responses were within…

Using an autoethnographic approach, this dissertation explores the path taken by a person who serves a unique population of individuals--people who not only have more than one disability, but in addition, are unable to communicate using verbal (spoken) speech. Starting with a recap of the history of the use and subsequent oppression of American…