The directory lists approximately 120 mutual support groups concerned with the medical and psychological impacts of genetic disorders and birth defects on individuals and their families. The groups are dedicated to serving the ongoing emotional, practical, and financial needs of these populations. The entries are arranged alphabetically and…

Designed primarily for parents of children with genetic disorders, the booklet provides information about parent groups. Part 1 describes parent groups, including organization, types of groups, and methods of outreach. A sample letter of invitation to attend a parent group and an outline of the initial meeting is included along with a list of…

The directory lists mutual support groups concerned with the medical and psychosocial impacts of genetic disorders and birth defects on affected individuals and families. Each organization included is dedicated to the ongoing emotional, practical, and financial needs of these populations. Entries are categorized by disorder, including: general,…

The directory is intended to aid patients and their families who are coping with the genetic disorder of Cooley's anemia. A brief review of the disease covers background, genetics, symptoms, effect on the patient, treatment, and current research. The next section looks at psychosocial needs at various times (time of diagnosis, infancy and toddler…

This publication presents information for each of the 60 research projects active under the support of the Maternal and Child Health Research Program (MCHRP) in Fiscal Years 1990 and 1991. The variety of research topics and objectives pursued by the 60 investigations mirrors the broad mandate of the MCHRP as well as the eclectic and…

This compilation presents background information and a resource directory concerning the growing dilemma of crack-exposed infants. Information on the incidence of crack use among women of child-bearing age is reviewed. The effects of crack on young children are outlined, and ways in which parents, educators, and other professionals can help these…

This publication includes proceedings from a fall 1989 meeting attended by representatives of projects funded by the Maternal and Child Health Bureau of the U.S. Public Health Service as part of its infant mortality reduction initiative. It also contains abstracts describing the funded projects and a list of products available to others interested…