Purpose: The response of each child to terminal illness treatment is highly individual. This will certainly affect the level and type of perceived needs. This study is conducted to examine the needs of children with terminal illness from the perspective of nurses and parents. Method: A qualitative descriptive study was conducted in this research.…

Epidermolysis Bullosa (EB) is a chronic disease, some types of which may have morbidity and mortality. That is why the patients must receive multidisciplinary care in case any complications arise. Families must be informed about the disease, about home care and receive genetic counselling. The importance of genetic counselling cannot be stressed…

The first annual report of the Disabled Children's Project, a 2-year project in Texas, provides information on project background, goal and objectives, approach, operations and accomplishments, and issues and problems. The project was designed to (1) provide training and support services to birth parents and foster parents of disabled infants and…