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Direct linkElizabeth Liffley; Marisa H. Fisher – Research and Practice for Persons with Severe Disabilities, 2025
Children with intellectual and developmental disabilities and extensive support needs (ESN) face a high risk of experiencing traumatic events, which may lead to a myriad of negative mental and physical health and educational outcomes. Identifying symptoms and treating trauma, however, are challenging due to communication difficulties, vague or…
Descriptors: Trauma, Intellectual Disability, Severe Disabilities, Developmental Disabilities
María Galán-Olleros; Elena González-Alguacil; Víctor Soto-Insuga; María Teresa Vara-Arias; Nelmar Valentina Ortiz-Cabrera; J. Ignacio Serrano; Rosa M. Egea-Gámez; Juan José García-Peñas; Ignacio Martínez-Caballero; Salvadora Aleza Esteras; Carlota Aparicio Fernández de Gatta; Elvira Cañedo Villarroya; Daniel Clemente Garulo; Rocío Falcón Roca; Silvia Gutiérrez Priego; Blanca López Monedero; Paula Moreno Gutiérrez; Miriam Martín Mangas; Francisca Romero Andujar; Amalia Tamariz Martel – Journal of Autism and Developmental Disorders, 2025
Purpose: Rett syndrome (RTT) is a rare multi-systemic disorder primarily linked to mutations in "MECP2" gene. This study aims to describe the prevalence of orthopedic conditions in RTT patients, and examine their intricate interplay with functional capabilities, and "MECP2" variant subtypes. Methods: Conducted as a…
Descriptors: Genetic Disorders, Intellectual Disability, Physical Disabilities, Patients
Suze van Wijngaarden; Marja W. Hodes; Leo Cardinaal; Mark Koning; Alice Schippers – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families of parents with intellectual disabilities still face discrimination, stigma and inadequate support, placing them in vulnerable positions. Social assistive robotics offers promising support. This study investigates the possible impact of social assistive robotics on family quality of life (FQoL). Method: An inclusive, iterative…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Social Bias
Hayley Kavanagh; Johann Issartel; Sarah Meegan; Mika Manninen – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Motor competence is the ability to perform goal directed human movements in a co-ordinated, accurate and error free manner. The aim of this study was to compare the accuracy of coaches' perceptions of children's motor competence with their actual motor competence. Method: This study examined the motor competence of children with…
Descriptors: Foreign Countries, Children, Motor Development, Norm Referenced Tests
Caitlin A. Williams; Paul A. Thompson; Nikita K. Hayden; Richard P. Hastings – American Journal on Intellectual and Developmental Disabilities, 2024
Cross-lagged panel designs were used to examine longitudinal and potential (bi)directional relationships between primary caregiver reported sibling relationship quality and the behaviors of children with intellectual disability (n = 297) and their closest in age siblings. The behavioral and emotional problems of the child with intellectual…
Descriptors: Sibling Relationship, Behavior Change, Family (Sociological Unit), Disabilities
Jean Ware; Susan Buell; Darren D. Chadwick; Jill Bradshaw; Juliet Goldbart – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This paper aims to identify to what extent staff training interventions are successful in enhancing the development of communication skills in people with profound intellectual and multiple disabilities. Methods: A systematic review was undertaken, conforming to PRISMA guidelines. English language, peer reviewed, empirical studies of…
Descriptors: Children, Adults, Intellectual Disability, Severe Disabilities
Carly A. Roberts; Alison Wilhelm; Bailey Allred; Roxanne F. Hudson – Exceptional Children, 2025
Historically, research exploring the literacy experiences of learners with intellectual and developmental disabilities (IDD) has prioritized systematic, multicomponent instruction that emphasizes the development of traditional reading and writing skills. However, this approach may inadvertently facilitate literacy gatekeeping and limit…
Descriptors: Child Rearing, Children, Intellectual Disability, Developmental Disabilities
Freya Wright; Anastasia Hronis; Rachel Roberts; Lynette Roberts; Ian Kneebone – Educational and Developmental Psychologist, 2025
Objective: People with intellectual disabilities have historically often been excluded from cognitive based therapies, due to their cognitive deficits. However, adults with intellectual disabilities have been found to have the core cognitive abilities necessary to engage in Cognitive Behaviour Therapy. Despite this emerging evidence, the capacity…
Descriptors: Intellectual Disability, Cognitive Restructuring, Children, Child Behavior
Meral, Bekir F.; Wehmeyer, Michael L.; Palmer, Susan B.; Ruh, Anil B.; Yilmaz, Engin – American Journal on Intellectual and Developmental Disabilities, 2023
Parenting styles and practices are crucial in promoting the self-determination of children. The purpose of the current study was to investigate the role of parenting styles and practices in enhancing the self-determination of children with/without intellectual and developmental disabilities (IDD). The present study was carried out with a sample of…
Descriptors: Parenting Styles, Self Determination, Children, Intellectual Disability
Heather J. Forbes; Jason C. Travers; Jenee Vickers Johnson – Augmentative and Alternative Communication, 2024
The Picture Exchange Communication System (PECS) is a popular augmentative and alternative communication intervention for individuals with developmental disabilities that includes six, sequential phases of instruction. We systematically reviewed published and unpublished single-case PECS studies for details about the percentage of participants…
Descriptors: Augmentative and Alternative Communication, Developmental Disabilities, Pictorial Stimuli, Program Effectiveness
Anastasia Dimitropoulos; Ellen A. Doernberg; Rachel A. Gordon; Kerrigan Vargo; Evelyn Nichols; Sandra W. Russ – American Journal on Intellectual and Developmental Disabilities, 2024
The current study examines the efficacy of an 8-week pretend play intervention targeting social-cognitive abilities in children with Prader-Willi syndrome (PWS), ages 6-9. PWS is a rare disorder associated with various social, emotional, and cognitive challenges linked to pretend play impairments, and for which interventions are sparse. Nineteen…
Descriptors: Genetic Disorders, Developmental Disabilities, Obesity, Intellectual Disability
Damien Wright; Aisling Kenny; Lindsay A. M. Mizen; Andrew G. McKechanie; Andrew C. Stanfield – American Journal on Intellectual and Developmental Disabilities, 2024
This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…
Descriptors: Behavior Problems, Age Differences, Epilepsy, Comorbidity
Kelli A. Sanderson; Meghan M. Burke; Jennifer L. Bumble – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the…
Descriptors: Adults, Children, Intellectual Disability, Developmental Disabilities
Torsten Hammann; Jakob Valic; Gašper Slapnicar; Mitja Luštrek – International Journal of Developmental Disabilities, 2024
Introduction: The preferences of people with profound intellectual and multiple disabilities (PIMD) often remain unfulfilled since it stays challenging to decode their idiosyncratic behavior resulting in a negative impact on their quality of life (QoL). Physiological data (i.e. heart rate (variability) and motion data) might be the missing piece…
Descriptors: Psychological Patterns, Intellectual Disability, Comorbidity, Severe Intellectual Disability
Özlem Öztürk Sahin; Aysel Topan; Zeynep Aközlü; Tugçe Kolukisa – Journal of Intellectual Disabilities, 2024
This study was conducted to evaluate the BMI of the children with intellectual disability and the factors affecting their BMI. This descriptive and cross-sectional study was carried out between March 2016 and April 2016 in Turkey and consisted of 135 children. Children's anthropometric measurements were and their BMI values were calculated.…
Descriptors: Intellectual Disability, Students with Disabilities, Foreign Countries, Parent Background
