Children with intellectual and developmental disabilities and extensive support needs (ESN) face a high risk of experiencing traumatic events, which may lead to a myriad of negative mental and physical health and educational outcomes. Identifying symptoms and treating trauma, however, are challenging due to communication difficulties, vague or…

The current study examines the efficacy of an 8-week pretend play intervention targeting social-cognitive abilities in children with Prader-Willi syndrome (PWS), ages 6-9. PWS is a rare disorder associated with various social, emotional, and cognitive challenges linked to pretend play impairments, and for which interventions are sparse. Nineteen…

This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…

Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the…

Many children with intellectual and/or developmental disabilities benefit from augmentative and alternative communication strategies (AAC) to increase their communicative competency. Furthermore, caregiver-implemented AAC interventions are an effective and efficient strategy to improve communication outcomes. We reviewed the caregiver-implemented…

Background: This review explored (1) what digital psychological wellbeing interventions for family carers of people with intellectual and developmental disabilities were reported in the literature, (2) evidence about their effectiveness, (3) factors affecting their implementation and (4) experiences of family carers who attend them. Methods: Seven…

We aim to determine the accessibility of gold-standard hearing assessments -- audiogram or auditory brainstem response (ABR) -- during the first 3 months of hearing health care for children with and without developmental disabilities. Electronic health records were examined from children (0-18 years) who received hearing health care at three…

Background: This two-site pilot study examined the feasibility, acceptability and preliminary outcomes of "PODER Familiar," a culturally tailored intervention to promote the health and well-being of Latina family caregivers and their children with intellectual and developmental disabilities. Method: Using the Promotora de Salud model and…

This scoping review explores (a) barriers faced by immigrant families of children with intellectual and developmental disabilities (IDD) when accessing healthcare-related services in the United States, (b) where research stands based on the health disparity research framework, and (c) implications for future health disparities research with this…

Children with intellectual and developmental disabilities (IDDs) require intensive multicomponent interventions to learn to read. Parent-implemented interventions have been shown to be effective for children with disabilities and are one potential method for providing intervention. This study used a multiple probe single case design to evaluate…

Objective: Quality participation, defined as satisfying and enjoyable involvement, is one of the most valued life outcomes for children with intellectual and developmental disabilities. To broaden understandings of quality participation, our review explored participation experiences of children with intellectual and developmental disabilities.…

Recommendations for achieving generalized instructional outcomes often overlook the capacity for generative learning. We sought to demonstrate how decontextualized and logically organized instruction would lead to derived and contextually appropriate recombinative generalization and arbitrarily applicable relational responding (AARRing) in…

Purpose: Wellbeing refers to a person's overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the…

Background: Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8-13. We investigated experiences of Positive Family…

The transition to adulthood is a significant step in every individual's life. Specifically, for individuals with disabilities, the transition process requires targeted planning for specific adulthood outcomes (e.g., employment, higher education, living skills, social skills, and community preferences). As such, parent and professional voices and…