This study aims to outline the establishment of an autism registry program in the East Azerbaijan province of Iran, delineate its components, present the initial descriptive analysis results of the registered cases, and outline potential opportunities for further utilization of registry data. The children and adolescents of age [less than or…

Integrated data systems are often used to inform decision making at the top tiers of local or state government. Policymakers use analyses based on large numbers of integrated data system (IDS) records (from which personal identifying information has been removed) to understand the overlap between cases that receive services from different systems…

Elucidating the heterogeneous etiologies of autism will require investment in comprehensive longitudinal data acquisition from large community based cohorts. With this in mind, we have established a hospital-university-based (HUB) database of autism which incorporates prospective and retrospective data from a large and ethnically diverse…

An integrated data system (IDS) that links information from separate administrative data systems offers policymakers, program administrators and researchers a powerful tool to analyze interactive effects across systems and make more informed decisions to improve outcomes for vulnerable families. This case study discusses how two states (Washington…