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Brillet, Leïla; Peries, Marianne; Vernhet, Christelle; Rattaz, Cécile; Michelon, Cécile; Baghdadli, Amaria – Journal of Autism and Developmental Disorders, 2023
Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent's coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the…
Descriptors: Coping, Autism Spectrum Disorders, Children, Parents
Liat Hamama – Journal of Autism and Developmental Disorders, 2024
The experience of family members of children with autism spectrum disorder (ASD) is not uniform. This study focused on mothers of a child with ASD (Study 1) and typically developing siblings (TDSs) during their emerging adulthood (Study 2). Similarities and differences were explored regarding a proposed model examining the paths of perceived…
Descriptors: Social Support Groups, Well Being, Family Relationship, Children
Vitale, Sarah Rose; Schneider, Hoa; Gardner, Lauren; Alessandri, Michael; Marker, Craig – Journal of Autism and Developmental Disorders, 2023
Children with autism spectrum disorder present with challenging behaviors that can impact caregivers by increasing parental perceived stress and risk for depression. However, positive coping strategies have also been identified as protective factors for parents of children with ASD. The present study examined parental perceived daily stressors and…
Descriptors: Behavior Problems, Parents, Depression (Psychology), Stress Variables
Assessing Child Life Specialists' Management of Challenging Behaviors in Autistic Pediatric Patients
Kaitlyn Schenk; Amy A. Weimer; Katherine Rice Warnell – Journal of Autism and Developmental Disorders, 2025
Given that autistic children are hospitalized at higher rates than neurotypical peers, it is important to understand the autism-specific preparedness of healthcare providers. Certified Child Life Specialists (CCLSs) play a crucial role in pediatric hospitalizations by providing socioemotional support and coping strategies. The present study…
Descriptors: Autism Spectrum Disorders, Children, Pediatrics, Patients
Rodgers, Jacqui; Goodwin, Jane; Garland, Deborah; Grahame, Victoria; Isard, Lucy; Kernohan, Ashleigh; Labus, Marie; Osborne, Malcolm; Parr, Jeremy R.; Rob, Priyanka; Wright, Catharine; Freeston, Mark – Journal of Autism and Developmental Disorders, 2023
Background: Anxiety related to uncertainty is common in autism. Coping with Uncertainty in Everyday Situations (CUES©) is a parent-mediated group intervention aiming to increase autistic children's tolerance to uncertain situations. A pilot study was conducted to test its feasibility and acceptability. Methods: Parents of 50 autistic children were…
Descriptors: Children, Autism Spectrum Disorders, Parents, Anxiety
Liddle, Melissa; Sonnentag, Tammy L. – Journal of Autism and Developmental Disorders, 2021
Children with developmental disabilities require more medical experiences than typically-developing children and struggle to cooperate with healthcare encounters. Adaptive care plans, delivered by child life specialists, are individualized patient-centered plans created to address the challenges that children with developmental disabilities…
Descriptors: Children, Adolescents, Developmental Disabilities, Patients
Laila Ashrafun; Mohammad Jasim Uddin; Dipa Debnath – Journal of Autism and Developmental Disorders, 2025
The diagnosis of autism spectrum disorder (ASD) poses myriad challenges for families, yet there is a scarcity of research focusing on their journey from recognizing initial anomalies to implementing interventions. This qualitative study examines how caregivers in Sylhet, Bangladesh, perceive and manage ASD in their children, including early…
Descriptors: Child Caregivers, Caregiver Attitudes, Autism Spectrum Disorders, Symptoms (Individual Disorders)
Ismail, Mohd Fahmi; Safii, Razitasham; Saimon, Rosalia; Rahman, Md. Mizanur – Journal of Autism and Developmental Disorders, 2022
This paper reported the quality of life (QoL) of 260 Malaysian parents with autism spectrum disorder (ASD) and factors which influencing it. About half of these parents reported to having good QoL. The factors identified in the double ABCX model showed that perceived social support and sense of coherence (SOC) were mediated by coping strategies…
Descriptors: Quality of Life, Parents, Children, Autism
Higgins, Louise; Mannion, Arlene; Chen, June L.; Leader, Geraldine – Journal of Autism and Developmental Disorders, 2023
This study explored the adaptation of parents raising a child with an Autism Spectrum Disorder (ASD) specifically the contributory role of positive perceptions, coping, self-efficacy, and social support. One hundred and thirty-six parents of children with a diagnosis of ASD completed a battery of self-report questionnaires via an online survey.…
Descriptors: Children, Autism Spectrum Disorders, Parents, Adjustment (to Environment)
Kuhlthau, Karen A.; Luberto, Christina M.; Traeger, Lara; Millstein, Rachel A.; Perez, Giselle K.; Lindly, Olivia J.; Chad-Friedman, Emma; Proszynski, Jacqueline; Park, Elyse R. – Journal of Autism and Developmental Disorders, 2020
Parents of children with Autism experience high levels of stress. Resiliency is the ability to cope and adapt when faced with stressful events. This randomized, waitlist controlled pilot trial examines the feasibility, acceptability, and preliminary efficacy of an adapted virtual mind--body group intervention for parents of children with ASD. The…
Descriptors: Parents, Children, Autism, Pervasive Developmental Disorders
May, Chris D.; St. George, Jennifer M.; Lane, Shelly – Journal of Autism and Developmental Disorders, 2022
This study explored potential influence of a text-based program for fathers of children on the autism spectrum. Fathers (N = 184) were recruited through autism services across Australia. Participants received messages focusing on five domains: (a) relationships with parenting partner; (b) formal support; (c) father-child interaction; (d)…
Descriptors: Fathers, Children, Autism, Pervasive Developmental Disorders
Iacob, Claudia I.; Avram, Eugen; Cojocaru, Daniel; Podina, Ioana R. – Journal of Autism and Developmental Disorders, 2020
The aim of this meta-analysis was to investigate factors associated with resilience in familial caregivers of children with developmental disabilities. The protocol was registered in the PROSPERO database, with the registration number CRD42018105180. Several electronic databases were searched for studies. A random-effects meta-analysis was…
Descriptors: Resilience (Psychology), Child Caregivers, Family Involvement, Developmental Disabilities
Oti-Boadi, M.; Dankyi, E.; Kwakye-Nuako, C. O. – Journal of Autism and Developmental Disorders, 2020
This study explored stigma experiences of mothers of children with ASD and forgiveness as their coping response. Semi-structured interviews were conducted with 6 mothers of children with ASD. Results of this study found several noteworthy themes including, feelings of mother, family/societal reactions, forgiveness factors, and impact of…
Descriptors: Executive Function, Social Bias, Mothers, Children
Fell, Lucy; Goshe, Brett; Traeger, Lara; Perez, Giselle; Iannuzzi, Dorothea; Park, Elyse; Kuhlthau, Karen; Luberto, Christina – Journal of Autism and Developmental Disorders, 2022
Teenage siblings of children with autism spectrum disorder (ASD) are at risk of worse mental health outcomes than their peers, yet there have been few interventions focused on improving their psychosocial wellbeing. This study explored the acceptability of an 8-session virtual group mind-body resiliency intervention for teen siblings of children…
Descriptors: Autism Spectrum Disorders, Siblings, Children, Adolescents
Voliovitch, Yair; Leventhal, John M.; Fenick, Ada M.; Gupta, Abha R.; Feinberg, Emily; Hickey, Emily J.; Shabanova, Veronika; Weitzman, Carol – Journal of Autism and Developmental Disorders, 2021
Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression…
Descriptors: Child Rearing, Parents, Children, Clinical Diagnosis

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