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What Approaches Described in Research Literature Enhance the Engagement of Children and Young People with Severe or Profound and Multiple Learning Disabilities? A Systematic Literature Review
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Dominic Fitzpatrick; Richard Parker – British Journal of Learning Disabilities, 2025
Background: Children and young people (CYP) with severe or profound and multiple learning disabilities are more likely to experience difficulties engaging for long periods. Finding ways to facilitate their engagement is crucial in promoting their social and emotional development and their mental well-being, particularly as they are more vulnerable…
Descriptors: Literature Reviews, Learning Disabilities, Severe Intellectual Disability, Multiple Disabilities
Development of an Online Training Course for Government Employees to Support Families with a Child with Profound Intellectual and Multiple Disabilities
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Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…
Descriptors: Curriculum Development, Online Courses, Training, Government Employees
A Family Peer Advocate Model to Address Disparities in Access to Care for Minority Autistic Children with Co-Occurring Attention-Deficit/Hyperactivity Disorder
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Pilar Trelles; Behrang Mahjani; Emma Wilkinson; Nicholas Buonagura; Lauren Donnelly; Jennifer Foss Feig; Danielle Halpern; Mary McKay; Paige Siper; Joseph D. Buxbaum; Alexander Kolevzon – Journal of Developmental and Physical Disabilities, 2025
Purpose: Family Peer Advocates (FPA) are used in healthcare broadly to facilitate engagement and address disparities in care. We previously reported on the benefit of FPAs in the care of autistic children on caregiver stress. Caregivers of autistic children report significant levels of caregiver stress, in particular when associated with…
Descriptors: Autism Spectrum Disorders, Attention Deficit Hyperactivity Disorder, Multiple Disabilities, Advocacy