Background: Individuals with intellectual and developmental disabilities (IDD) experience high rates of physical and mental health problems; yet their health care is often inadequate. Information about their characteristics and health services needs is critical for planning efficient and equitable services. A logical source of such information is…

The book presents a model recordkeeping system (Youth Services Information System--YSIS) for use with problem youth, including the developmentally disabled and delinquents. It is explained that the system is designed to support the planning and delivery of youth services, to maintain client-oriented case records and central files, and to produce…

Fernando Viesca has a 24-year-old son who suffers from Angelman Syndrome, a little known chromosomal disorder that has left him with significant functional deficiencies. When Nando lived at home, his father took care of him full time, thus alleviating any worries about medical care. However, now that Nando lives in a group home, his father is no…

The report describes tracking systems which address the need for early, reliable, and consistent identification and follow-up for children at risk for developmental disability. The systems, developed by 15 states that participated in the "Project Zero to Three" network, demonstrate how states may approach the linkages among prevention,…