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Kiley J. McLean; Meghan Haas; Jamie Koenig; Megan Horvath; Mariah Vigil; Nicole E. Werner; Lauren Bishop – Autism: The International Journal of Research and Practice, 2024
Emerging research points to high rates of major psychiatric disorders and chronic medical conditions among autistic adults. However, the unique healthcare needs of autistic adults are often overlooked, perhaps due to limitations in population-level surveillance and widespread public misconceptions about autism in adulthood. Understanding the…
Descriptors: Access to Health Care, Adults, Autism Spectrum Disorders, Barriers
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Kady F. Sternberg; Joanna G. Cloutier; Kaitlyn Ahlers; Christina Moore; Kathleen A. Koth; Takahiro Soda; Narpinder Kaur Malhi; Shikha Verma; Lisa C. Yeh; Jennifer L. McLaren – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability. Method: A scoping review was conducted…
Descriptors: Intellectual Disability, Incidence, LGBTQ People, Diversity
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Hassan Mansour; Amy Gillions; Jude Brown; Anoushka Pattenden; Susan Hartley; Sarifa Patel; Stephanie James; Martin Styles; Will Mandy; Joshua Stott; Elizabeth O'Nions – Autism: The International Journal of Research and Practice, 2025
Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences of autistic older adults. Semi-structured interviews were conducted with 19 autistic adults…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Older Adults, Health Services
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Luke P. Grosvenor; Ryan J. Cohen; Nancy P. Gordon; Maria L. Massolo; Hilda J. Cerros; Cathleen K. Yoshida; Jennifer L. Ames; Lisa A. Croen – Journal of Autism and Developmental Disorders, 2025
Purpose: To understand the ways in which autistic Latinx children experience disparities in diagnosis, healthcare, and receipt of specialty services. Methods: 417 individuals who identified as Latinx caregivers of autistic children who were members of the same integrated healthcare system in Northern California were surveyed. Responses were…
Descriptors: Hispanic Americans, Children, Access to Health Care, Health Insurance
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Jenna Zussino; Barbra Zupan; Robyn Preston – International Journal of Language & Communication Disorders, 2024
Background: Early identification and intervention for hearing loss is important for supporting language development. Despite this, parents are required to overcome barriers to access hearing assessments for their children. Aims: To identify the enablers and barriers to accessing hearing assessments for Australian children identified by their…
Descriptors: Foreign Countries, Hearing Impairments, Auditory Evaluation, Language Acquisition
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Dawn E. Cavanagh; Ruth Northway; Stuart Todd – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Little is known about how health issues identified at the annual health check (AHC) are followed up and addressed, how participants self-manage their health in between AHCs, and what support they receive. This research aimed to explore this. Methods: People with intellectual disabilities (n = 12), and/or their supporters residing in…
Descriptors: Intellectual Disability, Physical Examinations, Access to Health Care, Barriers
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Ailish Harrison – Child Care in Practice, 2025
Background: Avoidant/restrictive food intake disorder (ARFID) describes an eating disturbance associated with weight loss or faltering growth in children, significant nutritional deficiency, reliance on oral supplements, reliance on enteral feeding and/or a clear interference with psychosocial functioning, in the absence of body image concerns.…
Descriptors: Allied Health Personnel, Clinical Diagnosis, Medical Services, Children
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Astraea Augsberger; Margaret Carroll; Riana C. Howard; Gloria Ng; Thomas Maldonado-Reis; Andria Amador; Melissa S. Morabito; Jennifer Greif Green – School Mental Health, 2024
Youth mental health crises in the USA increased dramatically during the COVID-19 pandemic. Schools are uniquely positioned to address the growing mental health needs of youth by connecting them with mental health services; however, they are often under-resourced to provide these services. This study used community resource mapping to identify the…
Descriptors: Mental Health, Access to Health Care, Urban Areas, Barriers
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Gray, Ben; Kerridge, Tom – British Journal of Learning Disabilities, 2023
Background: People with learning disabilities are often left behind and ostracised in life, education, employment and in research. This article describes the importance and value that people with learning disabilities can bring when participating in co-production and lived experience research. The article reports on the inequalities and barriers…
Descriptors: Learning Disabilities, Experience, Access to Health Care, Barriers
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A. Miceli; L. Lucassen; R. Rinaldi; N. Van Ooteghem; D. Walter; M. Perau; C. Kahwaji; A. Mayart; E. Batselé – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Health Needs
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Sophie Brunt; Eleonora Sadikova; Jessica Pappagianopoulos; Micah O. Mazurek – Autism: The International Journal of Research and Practice, 2024
The COVID-19 pandemic disrupted a range of health services for children across the United States. Autistic children have well-documented deficits in health-related services compared to nonautistic children. Parents of autistic children reported an increase in mental health and behavior problems with the onset of the pandemic, increasing the need…
Descriptors: COVID-19, Pandemics, Autism Spectrum Disorders, Children
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McNeil, Karen; Achenbach, Jillian; Lawson, Beverley; Delahunty-Pike, Alannah; Barber, Brittany; Diepstra, Heidi – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although the Canadian Consensus Guidelines for Primary Care of Adults with Intellectual and Developmental Disabilities recommends conducting periodic health checks in primary care, uptake is lacking. This study seeks to understand factors influencing the conduct of periodic health checks and identify what needs to change to increase…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Developmental Disabilities
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Deena Kemp; Elizabeth A. Jacobs; Elizabeth Kvale; Navkiran K. Shokar; Katherine Sebastian; Justin K. Benzer; Joy Melody Woods Bennett – Health Education Research, 2024
Mobile mammography units (MMUs) can enhance access to breast cancer screening by providing convenient, cost-effective service, particularly for uninsured and underinsured women. However, prior studies indicate that acceptability concerns about quality and privacy, among other issues, may prevent women from utilizing MMUs. The current study employs…
Descriptors: Screening Tests, Cancer, Access to Health Care, Females
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Kate Sykes; Grant J. McGeechan; Emma L. Giles – British Journal of Learning Disabilities, 2024
Background: Women with learning disabilities are less likely to access cervical and breast cancer screening when compared to the general population. The Social Ecological Model (SEM) was used to examine the inequalities faced by women with learning disabilities in accessing cervical and breast cancer screening in England, UK. Methods: The findings…
Descriptors: Foreign Countries, Females, Learning Disabilities, Cancer
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Bilginer, Çilem; Yildirim, Selman; Törenek, Rümeysa; Özkaya, Ahmet Kagan – International Journal of Developmental Disabilities, 2023
Objective: This study aims to understand the presentations of autism spectrum disorder (ASD) patients in a tertiary hospital's emergency department (ED) in Turkey, and the difficulties of families face in the ED. Method: Clinical characteristics of ASD patients who presented to the ED between 1 January 2015 and 15 November 2020 were obtained by…
Descriptors: Autism Spectrum Disorders, Patients, Medical Services, Foreign Countries
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