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Direct linkMarissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
Stancliffe, Roger J.; Wiese, Michele Y.; Read, Sue; Jeltes, Gail; Barton, Rebecca; Clayton, Josephine M. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Caregivers often avoid involving people with intellectual disability in end-of-life discussions and activities. One reason is fear that the person may become upset or psychologically harmed. Methods: Pre and post a 6-month intervention about end of life, we assessed depression, anxiety, and fear of death among intervention (n = 24) and…
Descriptors: Adults, Intellectual Disability, Emotional Response, Discussion
Thackeray, Lisa A.; Eatough, Virginia – Journal of Applied Research in Intellectual Disabilities, 2015
Background: The predominant focus of extant literature exploring maternal experience of developmental disability has been stress, adaptation, efficacy of interventions and the burden of care. Most studies involve mothers of children, with scant attention given to what life is like later. This study qualitatively explores the experience of mothers…
Descriptors: Hermeneutics, Phenomenology, Trust (Psychology), Semi Structured Interviews
