Adults with intellectual and developmental disabilities (IDD) frequently have comorbidities that might interfere with colonoscopy preparation and examination. In this article, the authors review their experience with colonoscopies performed from 2002 through 2010 on adults with IDD at a state institution to evaluate quality and safety of…

This study found a high incidence of nontraumatic fractures in adults with developmental disabilities living in a state-run facility, a 7.3% incidence among 391 adults. Factors associated with fractures included use of antiepileptic medication. Although bone mineral density (BMD) by heel ultrasound did not predict fracture, values were much lower…

We studied possible relations between seizures and problem behavior in 3 adults with developmental disabilities. Each person was observed for between 56 and 92 days to record occurrences of seizures and problem behavior. Results of our descriptive analysis indicated an association between seizures and problem behavior for each participant. For…

This three-year pilot program provided an opportunity to work intensively with a small group of severe epileptic clients in a comprehensive rehabilitation center setting. The goals of the program were not only to evaluate intensively and attempt to maximize the individual client's potential for working and living in society through the provision…

Followup 8 years after reduction of antiepileptic drugs in 50 institutionalized developmentally disabled epileptic patients found recurrence of seizures in 26 patients. Predictors for a seizure-free state off medication included few documented seizures in lifetime, no gross neurological abnormalities, and persistently normal electroencephalograms.…

Background: Tuberous sclerosis (TS) is a multi- system disorder with complex genetics. The neurodevelopmental manifestations of TS are responsible for considerable morbidity. The prevalence of epilepsy and intellectual disabilities among individuals with TS have been well described. Ours is the first study that explores the prevalence and pattern…

The use of anti-epileptic medications (AEDs) is much higher in individuals with intellectual disabilities than in the general population. As many of these individuals rely on such medications, clinicians should consider psychometrically sound instruments for assessing adverse side effects of these medications as one aspect of routine clinical…

This issue brief provides a national profile of individuals with developmental disabilities based on the National Health Interview Survey on Disability, Phase 1. This in-depth survey of 107,400 individuals uses a complex sampling strategy which is designed to provide national incidence estimates for each survey item. Data are reported which were…

Estimates of the numbers of developmentally disabled persons 21 years or older in New Jersey were derived to establish a potential target population for work activity programs. Chapter 2 presents estimates by county of the eligible State population of mentally retarded, cerebral palsied, and epileptic persons. (Figures represent 1970 Census…

This document contains the proceedings from the National Conference on Developmental Disabilities and Gerontology, a conference designed to develop guidelines for program development on national, state, and local levels; develop and disseminate a proceedings publication; and provide an interface between professionals working at national, state,…

This document contains 16 papers that were scheduled to be presented at a conference (which was canceled) on approaches and programs for helping developmentally disabled persons to be more self-sufficient. The book is divided into three sections: (1) unmasking vocational abilities, (2) enhancing functional independence, and (3) medical and…