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Direct linkKiani, R.; Tyrer, F.; Jesu, A.; Bhaumik, S.; Gangavati, S.; Walker, G.; Kazmi, S.; Barrett, M. – Journal of Intellectual Disability Research, 2014
Background: People with intellectual disability (ID) and epilepsy are more likely to die prematurely than the general population. A significant number of deaths in people with epilepsy may be potentially preventable through better seizure control, regular monitoring and raising awareness among patients and carers. The aim of this project was to…
Descriptors: Death, Seizures, Epilepsy, Mental Retardation
Redley, M.; Prince, E.; Bateman, N.; Pennington, M.; Wood, N.; Croudace, T.; Ring, H. – Journal of Intellectual Disability Research, 2013
Background: Patients with intellectual disabilities (ID) receive health care by proxy. It is family members and/or paid support staff who must recognise health problems, communicate with clinicians, and report the benefits, if any, of a particular treatment. At the same time international and national statutes protect and promote the right of…
Descriptors: Parent Participation, Decision Making, Health Services, Mental Retardation
Kerr, M.; Scheepers, M.; Arvio, M.; Beavis, J.; Brandt, C.; Brown, S.; Huber, B.; Iivanainen, M.; Louisse, A. C.; Martin, P.; Marson, A. G.; Prasher, V.; Singh, B. K.; Veendrick, M.; Wallace, R. A. – Journal of Intellectual Disability Research, 2009
Background: Epilepsy has a pervasive impact on the lives of people with intellectual disability and their carers. The delivery of high-quality care is impacted on by the complexity and diversity of epilepsy in this population. This article presents the results of a consensus clinical guideline process. Results: A Delphi process identified a list…
Descriptors: Delphi Technique, Epilepsy, Mental Retardation, Guidelines
Finlayson, J.; Morrison, J.; Jackson, A.; Mantry, D.; Cooper, S.-A. – Journal of Intellectual Disability Research, 2010
Background: Injuries are among the leading causes of death and disability in the world and a major public health concern. Falls are a common cause. Young persons with intellectual disabilities (ID) have a higher rate and different pattern of injuries than the general population, but little is known regarding adults. Methods: The aim of this study…
Descriptors: Accidents, Incidence, Injuries, Public Health
Saemundsen, Evald; Juliusson, H.; Hjaltested, S.; Gunnarsdottir, T.; Halldorsdottir, T.; Hreidarsson, S.; Magnusson, P. – Journal of Intellectual Disability Research, 2010
Background: Research on the prevalence of autism in Iceland has indicated that one possible explanation of fewer autism cases in older age groups was due to an underestimation of autism in individuals with intellectual disabilities (IDs). The present study systematically searched for autism cases in the adult population of individuals with severe…
Descriptors: Incidence, Mental Retardation, Autism, Rating Scales
Matthews, T.; Weston, N.; Baxter, H.; Felce, D.; Kerr, M. – Journal of Intellectual Disability Research, 2008
Background: Although the elevated occurrence of epilepsy in people with intellectual disabilities (ID) is well recognized, the nature of seizures and their association with psychopathology and carer strain are less clearly understood. The aims were to determine the prevalence and features of epilepsy in a community-based population of adults with…
Descriptors: Place of Residence, Epilepsy, Mental Retardation, Seizures
Bhaumik, S.; Tyrer, F. C.; McGrother, C.; Ganghadaran, S. K. – Journal of Intellectual Disability Research, 2008
Background: UK policies aim to facilitate access to general psychiatric services for adults with intellectual disability (ID). If this is to be achieved, it is important to have a clear idea of the characteristics and proportion of people with ID who currently access specialist psychiatric services and the nature and extent of psychiatric…
Descriptors: Psychiatric Services, Health Services, Gender Differences, Incidence
Raznahan, A.; Joinson, C.; O'Callaghan, F.; Osborne, J. P.; Bolton, P. F. – Journal of Intellectual Disability Research, 2006
Background: Tuberous sclerosis (TS) is a multi- system disorder with complex genetics. The neurodevelopmental manifestations of TS are responsible for considerable morbidity. The prevalence of epilepsy and intellectual disabilities among individuals with TS have been well described. Ours is the first study that explores the prevalence and pattern…
Descriptors: Psychopathology, Developmental Disabilities, Mental Retardation, Genetics
