This study leveraged the knowledge and experiences of youth with disabilities, their families, and transition stakeholders to model how the frequency of family engagement activities and services and employment preparation activities and services predict the frequency of youth development activities and services. This information was obtained…

Every year, the prevalence of children with autism increases, and community programs should be prepared to address the needs of this population. Comprehensive Treatment Models (CTMs) are in place to help serve children with autism, but the components of these programs are diverse. Furthermore, recommendations from prominent organizations such as…

We investigated empowerment in the Alpha-1 Antitrypsin Deficiency (Alpha-1) community, a rare, genetic disease network in the United States. The research was motivated by nine years of observations in the community. After observing what seemed to be a heightened amount of activism among Alpha-1 community members, I had hypothesized that this…