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Direct linkCaroline L. Roberts; Ashleigh H. Avina; Frank J. Symons – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive treatment. The purpose of this study (n = 15) was to begin to understand the treatment gap from the perspective of family caregivers. Methods: In…
Descriptors: Intellectual Disability, Family Role, Caregivers, Developmental Disabilities
Finucane, Brenda; Haas-Givler, Barbara – Journal of Mental Health Research in Intellectual Disabilities, 2009
Smith-Magenis syndrome (SMS) is a neurobehavioral disorder associated with deletions and mutations of the "RAI1" gene on chromosome 17p11.2. Clinical features of the syndrome include intellectual disability, sleep disturbance, craniofacial differences, and a distinctive profile of stereotypic and self-injurious behaviors. Although the functional…
Descriptors: Mental Retardation, Interdisciplinary Approach, Sleep, Genetic Disorders
