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Douglas Odongo Attoh; Eric Agyemang; Ronald Kondor; John Boulard Forkuor; Kwadwo Ofori-Dua – Journal of Intellectual & Developmental Disability, 2024
Background: In most African countries, disability is explained by cultural beliefs. This has implications for healthcare delivery for persons with intellectual disabilities. Methods: With the aid of a qualitative approach, we explore the interplay between cultural beliefs and the training of health professionals and their implications for the…
Descriptors: Foreign Countries, Intellectual Disability, Cultural Influences, Access to Health Care
Shoshana Dreyfus; Anne Nolan; Melanie Randle – Journal of Intellectual & Developmental Disability, 2024
Background: This study investigated the extent to which behaviour support services are accessible under Australia's National Disability Insurance Scheme (NDIS). Method: We conducted semi-structured interviews with families who support a member with an intellectual disability and challenging behaviour. We analysed this data with a supply and demand…
Descriptors: Foreign Countries, Behavior Modification, Access to Health Care, Intellectual Disability
Marie Matérne; Marie Holmefur – Journal of Intellectual & Developmental Disability, 2024
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults…
Descriptors: Access to Health Care, Adults, Severe Intellectual Disability, Multiple Disabilities
Quinn, Sam; Rhynas, Sarah J.; Gowland, Susan; Cameron, Lois; Braid, Nicola; Holloway, Aisha; O'Connor, Siobhan – Journal of Intellectual & Developmental Disability, 2023
Background: Issues of risk and safety can be challenging to discuss with forensic patients with an intellectual disability. Talking Mats is a visual communication tool that facilitates therapeutic conversations. Method: A pilot study, adopting an ethnographic approach, was used to evaluate Talking Mats. Interviews and video observations were…
Descriptors: Safety, Intellectual Disability, Augmentative and Alternative Communication, Nurses
Delany, C.; Diocera, M.; Lewin, J. – Journal of Intellectual & Developmental Disability, 2023
Background: People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their specific concerns, needs and preferences about care. Methods: In this case report, we present a case report of a 33-year-old male with severe…
Descriptors: Intellectual Disability, Cancer, Barriers, Access to Health Care
Hirose, Naoki; Morita, Kojiro; Jo, Taisuke; Hagiwara, Yasuhiro; Matsui, Hiroki; Fushimi, Kiyohide; Yasunaga, Hideo – Journal of Intellectual & Developmental Disability, 2022
Background: We examined the association between intellectual disabilities (ID) and pneumonia severity at admission. Methods: We extracted patients admitted to hospital for pneumonia from July 2010 to March 2018 using the Diagnosis Procedure Combination database. We measured pneumonia severity using the A-DROP system. After 1:4 cohort matching…
Descriptors: Intellectual Disability, Diseases, Hospitals, Patients
Olsen, Monica Isabel; Søndenaa, Erik; Langballe, Ellen Melbye; Halvorsen, Marianne Berg; Wilhelmsen, Per; Bautz-Holter, Erik; Anke, Audny – Journal of Intellectual & Developmental Disability, 2023
Background: This study investigates the use of health and dental care services in adults with intellectual disability in the last 12 months according to Norwegian recommendations and in relation to age and intellectual disability levels. Method: A cross-sectional community-based survey including 214 participants (56% men). POMONA health indicators…
Descriptors: Access to Health Care, Dental Health, Adults, Intellectual Disability
Wark, Stuart; Bryant, Lia; Morales-Boyce, Tyson; Deuter, Kate – Journal of Intellectual & Developmental Disability, 2023
Background: Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method: A focus group interview model…
Descriptors: Foreign Countries, Delivery Systems, Rural Areas, Intellectual Disability
Puccetti, Luca; Nerattini, Marco; Quercioli, Cecilia; Sancasciani, Simonetta; Lo Presti, Eluisa; Mechi, Maria Teresa – Journal of Intellectual & Developmental Disability, 2020
Background: Evidence from international studies suggests that ward culture, staff attitudes, and knowledge are crucial to ensuring that hospitals adopt "reasonable adjustments" to guarantee equity of access to vulnerable patients. Among the major barriers to providing reasonable adjustments highlighted in the literature is the lack of…
Descriptors: Foreign Countries, Health Programs, Disabilities, Access to Health Care
Smith, Lauren D.; Valentine, Anne; Moore Simas, Tiffany A.; Parish, Susan L.; Levy, Alanna; Mitra, Monika – Journal of Intellectual & Developmental Disability, 2023
Background: Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities.…
Descriptors: Intellectual Disability, Developmental Disabilities, Pregnancy, Perinatal Influences
Geuze, Liesbeth; Goossensen, Anne; Schrevel, Samuel – Journal of Intellectual & Developmental Disability, 2023
Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon "parenting a child with PIMD." Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research was used. Findings: The essential meaning of the…
Descriptors: Foreign Countries, Children, Parent Attitudes, Child Rearing
Jenny Aspling; Veronica Svärd; Magnus Tideman – Journal of Intellectual & Developmental Disability, 2025
Background: Support from staff plays an important role in quality of life for people with intellectual disability. This study focuses on service users' views of Active Support as good support and whether Active Support increases the quality of everyday support in group homes. Method: Nine service users were interviewed at baseline and at follow-up…
Descriptors: Foreign Countries, Adults, Group Homes, Intellectual Disability
Frielink, Noud; Oudshoorn, Cathelijn E. M.; Embregts, Petri J. C. M. – Journal of Intellectual & Developmental Disability, 2021
Background: The use of eHealth in support for daily functioning of service users with intellectual disability (ID) is a rather unexplored domain. Therefore, the current study identified the a) level of familiarity, b) advantages/disadvantages, and c) facilitating/impeding factors for the use of eHealth in support for daily functioning of people…
Descriptors: Access to Health Care, Barriers, Foreign Countries, Residential Care
Agaronnik, Nicole; Pendo, Elizabeth; Lagu, Tara; DeJong, Christene; Perez-Caraballo, Aixa; Iezzoni, Lisa I. – Journal of Intellectual & Developmental Disability, 2020
Background: Women with intellectual disability experience disparities in sexual and reproductive health care services. Methods: To explore perceptions of caring for persons with disability, including individuals with intellectual disability, we conducted open-ended individual interviews with 20 practising physicians and three video-based focus…
Descriptors: Females, Intellectual Disability, Civil Rights, Pregnancy
King, Michelle – Journal of Intellectual & Developmental Disability, 2020
"Dedifferentiation" represents the merging of the wider "intellectual disability" category with the broader one of "disability" generally; a product of the ascendance of the social model of disability. The recent re-emergence of the significance of impairment and embodiment in disability theory re-establishes the…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Classification, Decision Making