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Direct linkZhang, Dajie; Kaufmann, Walter E.; Sigafoos, Jeff; Bartl-Pokorny, Katrin D.; Krieber, Magdalena; Marschik, Peter B.; Einspieler, Christa – Journal of Intellectual & Developmental Disability, 2017
Background: Retrospective parental reports have often been used to identify the early characteristics of children later diagnosed with a developmental disorder. Method: We applied this methodology to document 13 parents' initial concerns about the development of their 17 children later diagnosed with fragile X syndrome (FXS). Parents were…
Descriptors: Parents, Parent Attitudes, Genetic Disorders, Intellectual Disability
