Background: Parents of children with intellectual and neurodevelopmental disorders are a highly burdened group that faces additional challenges during the COVID-19 pandemic. Methods: In this study, parents of children with intellectual and neurodevelopmental disorders (N = 600) living in Canada participated in a cross-sectional online survey.…

Background: Research suggests physicians may harbour paternalistic attitudes towards people with intellectual and developmental disabilities and lack the knowledge and skills to work with them. This study examined the impact of a brief intellectual and developmental disability curriculum intervention on these outcomes. Methods: First-year medical…

Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight…

Background: Quality of Life (QoL) may be a factor in physicians' decisions on treatment of persons with Profound Intellectual and Multiple Disabilities (PIMD). We explored the perception of physicians on the QoL of persons with PIMD. Method: We conducted semi-structured interviews with seven experienced physicians treating persons with PIMD,…

Background: Adults with disabilities in low-income communities of colour are disproportionately affected by the COVID-19 pandemic. Method: We interviewed 14 self-advocates with intellectual and developmental disabilities (IDD) to learn more about their experiences during the peak of infections, hospitalisations, and deaths in Los Angeles, between…

Background: Attitudes of classmates has been considered as one of the major problems in inclusive education, negatively influencing the participation of students with disability in school contexts. The goal of this study was to examine Italian typically developing children's attitudes towards their peers with disabilities. Method: In a sample of…

Background: Issues of risk and safety can be challenging to discuss with forensic patients with an intellectual disability. Talking Mats is a visual communication tool that facilitates therapeutic conversations. Method: A pilot study, adopting an ethnographic approach, was used to evaluate Talking Mats. Interviews and video observations were…

Background: Individuals with intellectual and developmental disabilities are more likely to engage in problem behaviours than peers with typical development. The purpose of this study was to provide descriptive and qualitative information about problem behaviours in children with fragile X syndrome (FXS) and how families respond to these…

Background: Direct support professionals' (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method: The previously validated Health…

Background: People with intellectual and developmental disabilities (IDD) may be at risk for medication-related problems due to complex medication regimens. The objective of this study was to determine the medication regimen complexity of adults with IDD. Methods: This retrospective study compared the Medication Regimen Complexity Index (MRCI)…

Background: Individuals with intellectual disability (ID) and autism spectrum disorder (ASD) are at increased risk of sexual abuse. However, little is known about facilitating detection and disclosure. One year after discharge from a specialised psychiatric ward, a young man with mild ID and ASD disclosed previously unknown sexual abuse. The aim…

Background: Parents of children with intellectual disability (ID) have been found to be more likely to experience lower levels of life satisfaction than parents of typically developing children as a result of the increased challenges they experience. Based on a life design approach, which emphasises the role of career adaptability and resilience…

Background: Many people with intellectual disability have limited sexual knowledge. Several assessment tools have been developed to assess the sexual knowledge of people with intellectual disability. This paper examines how clinicians' are using these tools. Method: This research uses a constructivist grounded theory approach. Semistructured…

Background: The aim of this study was to explore how educated Bedouin women perceive the causes and meaning of their marriages to Bedouin men with intellectual disability (ID). Methods: In-depth semi-structured ethnographic interviews were utilised in data collection from 15 educated Bedouin women who were married to Bedouin men with ID. The…

Background: The social relationships model was developed to describe positive relationships between support staff and people with intellectual disability. We evaluated an educational intervention based on this model. Method: Eighteen staff supporting 5 adult service users with severe or profound intellectual disability from 3 day services received…