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Ghanouni, Parisa; Quirke, Stephanie – Journal of Autism and Developmental Disorders, 2023
Individuals with Autism spectrum disorder (ASD) are prone to stress and anxiety affecting their mental health. Although developing coping and resilience are key to cope with stressors of life, limited research exists. We aimed to explore stakeholders' experiences related to the coping and resilience of adults with ASD. We interviewed 22…
Descriptors: Resilience (Psychology), Coping, Autism Spectrum Disorders, Adults
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Maljaars, Jarymke; Gijbels, Eef; Evers, Kris; Spain, Debbie; Rumball, Freya; Happé, Francesca; Noens, Ilse – Journal of Autism and Developmental Disorders, 2023
Using a mixed methods design, this study aimed to examine the impact of the COVID-19 pandemic on autistic and non-autistic adults. We conducted an online survey with 196 autistic and 228 non-autistic adults from Belgium, the Netherlands and the United Kingdom focusing on their experiences during the first period of the pandemic. Our results…
Descriptors: COVID-19, Adults, Autism Spectrum Disorders, Experience
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Vitale, Sarah Rose; Schneider, Hoa; Gardner, Lauren; Alessandri, Michael; Marker, Craig – Journal of Autism and Developmental Disorders, 2023
Children with autism spectrum disorder present with challenging behaviors that can impact caregivers by increasing parental perceived stress and risk for depression. However, positive coping strategies have also been identified as protective factors for parents of children with ASD. The present study examined parental perceived daily stressors and…
Descriptors: Behavior Problems, Parents, Depression (Psychology), Stress Variables
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ten Hoopen, Leontine W.; de Nijs, Pieter F. A.; Duvekot, Jorieke; Greaves-Lord, Kirstin; Hillegers, Manon H. J.; Brouwer, Werner B. F.; Hakkaart-van Roijen, Leona – Journal of Autism and Developmental Disorders, 2022
This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively…
Descriptors: Caring, Child Caregivers, Autism Spectrum Disorders, Quality of Life
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Iannuzzi, Dorothea; Fell, Lucy; Luberto, Christina; Goshe, Brett M.; Perez, Giselle; Park, Elyse; Crute, Sydney; Kuhlthau, Karen; Traeger, Lara – Journal of Autism and Developmental Disorders, 2022
Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings' lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages…
Descriptors: Adolescents, Young Adults, Siblings, Autism
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Friesen, Kelsey A.; Weiss, Jonathan A.; Howe, Stephanie J.; Kerns, Connor M.; McMorris, Carly A. – Journal of Autism and Developmental Disorders, 2022
Many caregivers of autistic people experience mental health issues, and the impact of disruptions due to COVID-19 may present additional challenges for these individuals. This study characterized caregiver stress, anxiety, and resilient coping during COVID-19 and investigated the impact of COVID-19 disruptions, demographic variables, and resilient…
Descriptors: COVID-19, Pandemics, Autism, Pervasive Developmental Disorders
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Grebe, Stacey C.; Mire, Sarah S.; Kim, Hanjoe; Keller-Margulis, Milena A. – Journal of Autism and Developmental Disorders, 2022
Mothers are often the primary parent participants in autism spectrum disorder (ASD) research. As a result, little is known about fathers' perceptions regarding their children's ASD and whether these perceptions differ from mothers'. Given the limited information available regarding fathers' perceptions about their children's ASD, this study aimed…
Descriptors: Comparative Analysis, Mother Attitudes, Father Attitudes, Autism
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May, Chris D.; St. George, Jennifer M.; Lane, Shelly – Journal of Autism and Developmental Disorders, 2022
This study explored potential influence of a text-based program for fathers of children on the autism spectrum. Fathers (N = 184) were recruited through autism services across Australia. Participants received messages focusing on five domains: (a) relationships with parenting partner; (b) formal support; (c) father-child interaction; (d)…
Descriptors: Fathers, Children, Autism, Pervasive Developmental Disorders
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Meredith R. Maroney; Heidi M. Levitt; Sharon G. Horne – Journal of Autism and Developmental Disorders, 2024
This experimental study explored the use of online expressive writing interventions to cope with distress from heterosexist events among a sample of autistic-LBGQ + individuals. This study included an open writing condition and an emotion focused therapy guided writing condition. Over 89% of the participants indicated that the writing exercises…
Descriptors: LGBTQ People, Autism Spectrum Disorders, Sexual Orientation, Gender Bias
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Voliovitch, Yair; Leventhal, John M.; Fenick, Ada M.; Gupta, Abha R.; Feinberg, Emily; Hickey, Emily J.; Shabanova, Veronika; Weitzman, Carol – Journal of Autism and Developmental Disorders, 2021
Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression…
Descriptors: Child Rearing, Parents, Children, Clinical Diagnosis
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Baixauli, I.; Mira, A.; Berenguer, C.; Roselló, B.; Miranda, A. – Journal of Autism and Developmental Disorders, 2019
The primary objective of this study was to identify the profiles of families of children with autism spectrum disorder (ASD) without intellectual disability (ID) based on several risk indicators: sociodemographic and emotional indicators, parental stress, confidant social support, and coping strategies. A second aim was to determine the…
Descriptors: Family Environment, Children, Autism, Pervasive Developmental Disorders
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Ang, Karen Qian Ping; Loh, Pek Ru – Journal of Autism and Developmental Disorders, 2019
Research has supported the notion that gender plays a significant role in coping and mental health outcome among parents of children with ASD. The current study aims to examine gender role in the relationship between mental health outcome and coping in parents of children with ASD in Singapore. This study involved 97 fathers and 106 mothers of…
Descriptors: Mental Health, Coping, Parent Child Relationship, Autism
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Williams, Takeshia V.; Hartmann, Kathrin; Paulson, James F.; Raffaele, C. Teal; Urbano, Maria R. – Journal of Autism and Developmental Disorders, 2019
The purpose of the present study was to understand how caregiver stress and coping behaviors impact African American and Euro-American families differently when caring for a child with autism. This study used discriminate function analysis to contrast the stress and coping profiles of Euro-American caregivers who are more acculturated with the…
Descriptors: Coping, Stress Variables, Autism, Pervasive Developmental Disorders
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Sim, Angela; Cordier, Reinie; Vaz, Sharmila; Parsons, Richard; Falkmer, Torbjörn – Journal of Autism and Developmental Disorders, 2017
Dyadic coping strategies may play a pivotal role in relationship satisfaction and explain why some couples adapt positively to the challenges associated with raising a child with ASD and others do not. Survey data from 127 caregivers of a child with ASD were used in generalized estimating equation analyses to investigate the factors associated…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Marital Instability
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May, Chris D.; St George, Jennifer M.; Fletcher, Richard J.; Dempsey, Ian; Newman, Louise K. – Journal of Autism and Developmental Disorders, 2017
The coparenting relationship has been linked to parenting stress, parenting self-efficacy and many other concerns associated with the development of children with ASD. Parents of children with ASD (N = 22) were interviewed to explore three domains of their coparenting relationship; (1) adaptation to the emergence of their child's autism, (2)…
Descriptors: Parenting Skills, Autism, Pervasive Developmental Disorders, Child Development
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