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Brillet, Leïla; Peries, Marianne; Vernhet, Christelle; Rattaz, Cécile; Michelon, Cécile; Baghdadli, Amaria – Journal of Autism and Developmental Disorders, 2023
Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent's coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the…
Descriptors: Coping, Autism Spectrum Disorders, Children, Parents
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Ghanouni, Parisa; Quirke, Stephanie – Journal of Autism and Developmental Disorders, 2023
Individuals with Autism spectrum disorder (ASD) are prone to stress and anxiety affecting their mental health. Although developing coping and resilience are key to cope with stressors of life, limited research exists. We aimed to explore stakeholders' experiences related to the coping and resilience of adults with ASD. We interviewed 22…
Descriptors: Resilience (Psychology), Coping, Autism Spectrum Disorders, Adults
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Cyr Brisini, Kellie St.; Tian, Xi; Solomon, Denise – Journal of Autism and Developmental Disorders, 2023
This study describes parents' daily "highs" and "lows" during their child's transition to school for the first time and examines how those experiences relate to turbulence in the parents' relationship. 106 parents (53 couples) rated their relationship qualities at pre-test and post-test and described "high" and…
Descriptors: Autism Spectrum Disorders, Students with Disabilities, Marital Instability, Family Environment
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Vitale, Sarah Rose; Schneider, Hoa; Gardner, Lauren; Alessandri, Michael; Marker, Craig – Journal of Autism and Developmental Disorders, 2023
Children with autism spectrum disorder present with challenging behaviors that can impact caregivers by increasing parental perceived stress and risk for depression. However, positive coping strategies have also been identified as protective factors for parents of children with ASD. The present study examined parental perceived daily stressors and…
Descriptors: Behavior Problems, Parents, Depression (Psychology), Stress Variables
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ten Hoopen, Leontine W.; de Nijs, Pieter F. A.; Duvekot, Jorieke; Greaves-Lord, Kirstin; Hillegers, Manon H. J.; Brouwer, Werner B. F.; Hakkaart-van Roijen, Leona – Journal of Autism and Developmental Disorders, 2022
This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively…
Descriptors: Caring, Child Caregivers, Autism Spectrum Disorders, Quality of Life
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Rodgers, Jacqui; Goodwin, Jane; Garland, Deborah; Grahame, Victoria; Isard, Lucy; Kernohan, Ashleigh; Labus, Marie; Osborne, Malcolm; Parr, Jeremy R.; Rob, Priyanka; Wright, Catharine; Freeston, Mark – Journal of Autism and Developmental Disorders, 2023
Background: Anxiety related to uncertainty is common in autism. Coping with Uncertainty in Everyday Situations (CUES©) is a parent-mediated group intervention aiming to increase autistic children's tolerance to uncertain situations. A pilot study was conducted to test its feasibility and acceptability. Methods: Parents of 50 autistic children were…
Descriptors: Children, Autism Spectrum Disorders, Parents, Anxiety
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Ismail, Mohd Fahmi; Safii, Razitasham; Saimon, Rosalia; Rahman, Md. Mizanur – Journal of Autism and Developmental Disorders, 2022
This paper reported the quality of life (QoL) of 260 Malaysian parents with autism spectrum disorder (ASD) and factors which influencing it. About half of these parents reported to having good QoL. The factors identified in the double ABCX model showed that perceived social support and sense of coherence (SOC) were mediated by coping strategies…
Descriptors: Quality of Life, Parents, Children, Autism
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Higgins, Louise; Mannion, Arlene; Chen, June L.; Leader, Geraldine – Journal of Autism and Developmental Disorders, 2023
This study explored the adaptation of parents raising a child with an Autism Spectrum Disorder (ASD) specifically the contributory role of positive perceptions, coping, self-efficacy, and social support. One hundred and thirty-six parents of children with a diagnosis of ASD completed a battery of self-report questionnaires via an online survey.…
Descriptors: Children, Autism Spectrum Disorders, Parents, Adjustment (to Environment)
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Kuhlthau, Karen A.; Luberto, Christina M.; Traeger, Lara; Millstein, Rachel A.; Perez, Giselle K.; Lindly, Olivia J.; Chad-Friedman, Emma; Proszynski, Jacqueline; Park, Elyse R. – Journal of Autism and Developmental Disorders, 2020
Parents of children with Autism experience high levels of stress. Resiliency is the ability to cope and adapt when faced with stressful events. This randomized, waitlist controlled pilot trial examines the feasibility, acceptability, and preliminary efficacy of an adapted virtual mind--body group intervention for parents of children with ASD. The…
Descriptors: Parents, Children, Autism, Pervasive Developmental Disorders
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Voliovitch, Yair; Leventhal, John M.; Fenick, Ada M.; Gupta, Abha R.; Feinberg, Emily; Hickey, Emily J.; Shabanova, Veronika; Weitzman, Carol – Journal of Autism and Developmental Disorders, 2021
Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression…
Descriptors: Child Rearing, Parents, Children, Clinical Diagnosis
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Jacques, Claudine; Saulnier, Geneviève; Éthier, Agnès; Soulières, Isabelle – Journal of Autism and Developmental Disorders, 2022
To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Adolescents
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Baixauli, I.; Mira, A.; Berenguer, C.; Roselló, B.; Miranda, A. – Journal of Autism and Developmental Disorders, 2019
The primary objective of this study was to identify the profiles of families of children with autism spectrum disorder (ASD) without intellectual disability (ID) based on several risk indicators: sociodemographic and emotional indicators, parental stress, confidant social support, and coping strategies. A second aim was to determine the…
Descriptors: Family Environment, Children, Autism, Pervasive Developmental Disorders
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Bohadana, Gal; Morrissey, Shirley; Paynter, Jessica – Journal of Autism and Developmental Disorders, 2019
The double ABCX model of adaptation has been used to predict parental outcomes in parents of children with autism spectrum disorder (ASD), with predictors including child characteristics, pile up of demands, external resources, coping, parental perceptions, and internal resources. This study investigated whether self-compassion is a unique…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Children
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Sim, Angela; Cordier, Reinie; Vaz, Sharmila; Parsons, Richard; Falkmer, Torbjörn – Journal of Autism and Developmental Disorders, 2017
Dyadic coping strategies may play a pivotal role in relationship satisfaction and explain why some couples adapt positively to the challenges associated with raising a child with ASD and others do not. Survey data from 127 caregivers of a child with ASD were used in generalized estimating equation analyses to investigate the factors associated…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Marital Instability
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Krakovich, Teri M.; McGrew, John H.; Yu, Yue; Ruble, Lisa A. – Journal of Autism and Developmental Disorders, 2016
We applied the ABCX model of stress and coping to assess the association between child and family demands, school-based resources (i.e., parent-teacher alliance and COMPASS, a consultation intervention), and two measures of parent stress: perceptions of the demands of raising a child (Child domain) and reactions to those demands (Parent domain).…
Descriptors: Parents, Anxiety, Autism, Pervasive Developmental Disorders
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