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Emily D'Arcy; Tayah Burnett; Emily Capstick; Catherine Elder; Olivia Slee; Sonya Girdler; Melissa scott; Ben Milbourn – Journal of Autism and Developmental Disorders, 2024
Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey…
Descriptors: Foreign Countries, Caregivers, Well Being, Needs
Taylor, Julie Lounds; Warren, Zachary E. – Journal of Autism and Developmental Disorders, 2012
The current study examined depressive symptoms, concerning the week following autism spectrum diagnosis and an average of 1.4 years later, in mothers (n = 75) of young children diagnosed with an autism spectrum disorder (ASD). Over three-quarters of mothers (78.7%) provided retrospective reports of clinically significant depressive symptoms…
Descriptors: Mothers, Autism, Identification, Depression (Psychology)
Hoefman, Renske; Payakachat, Nalin; van Exel, Job; Kuhlthau, Karen; Kovacs, Erica; Pyne, Jeffrey; Tilford, J. Mick – Journal of Autism and Developmental Disorders, 2014
This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems…
Descriptors: Child Rearing, Children, Autism, Pervasive Developmental Disorders
Dababnah, Sarah; Bulson, Kathleen – Journal of Autism and Developmental Disorders, 2015
We examined access to autism-related services among Palestinians (N = 24) raising children with autism spectrum disorder (ASD) in the West Bank. Using qualitative methods, we identified five primary interview themes. Poor screening, diagnostic, and psychoeducational practices were prevalent, as parents reported service providers minimized parental…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Health Services

Jarbrink, Krister; Fombonne, Eric; Knapp, Martin – Journal of Autism and Developmental Disorders, 2003
This article outlines the elements that were included in a study that measured the cost of providing informal care to children (ages 4-10) with autism. The application of the instrument in a study of 15 families offers tentative evidence on the parental economic burden and the costs of informal care. (Contains references.) (Author/CR)
Descriptors: Autism, Cost Estimates, Early Childhood Education, Elementary Education