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Kady F. Sternberg; Joanna G. Cloutier; Kaitlyn Ahlers; Christina Moore; Kathleen A. Koth; Takahiro Soda; Narpinder Kaur Malhi; Shikha Verma; Lisa C. Yeh; Jennifer L. McLaren – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability. Method: A scoping review was conducted…
Descriptors: Intellectual Disability, Incidence, LGBTQ People, Diversity
Dawn E. Cavanagh; Ruth Northway; Stuart Todd – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Little is known about how health issues identified at the annual health check (AHC) are followed up and addressed, how participants self-manage their health in between AHCs, and what support they receive. This research aimed to explore this. Methods: People with intellectual disabilities (n = 12), and/or their supporters residing in…
Descriptors: Intellectual Disability, Physical Examinations, Access to Health Care, Barriers
Hana Anderson; Amy C. Studer – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Individuals with intellectual disabilities experience barriers to quality healthcare. To reduce this disparity, equipping medical trainees with the knowledge and skills required for treating this patient population is critical. Our aim is to describe the breadth of instructional interventions and identify gaps in intellectual…
Descriptors: Literature Reviews, Medical Education, Patients, Physician Patient Relationship
Alison Devitt; Melissa Nott; Stephanie Nelson; Julia Sgarlata; Michelle Gray; Srilaxmi Balachandran; Asma Taskin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…
Descriptors: COVID-19, Pandemics, Access to Health Care, Program Effectiveness
A. Miceli; L. Lucassen; R. Rinaldi; N. Van Ooteghem; D. Walter; M. Perau; C. Kahwaji; A. Mayart; E. Batselé – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Health Needs
Verstraten-Oudshoorn, Lisette M.; Coppus, Antonia M.; Klein, Mieke; Bakker-van Gijssel, Esther J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A comprehensive multidisciplinary medical guideline for adults with Down syndrome is lacking in the Netherlands. In this study, we aim to explore parents' views on multidisciplinary care and identify which aspects of health care they find most important in the context of developing such a guideline. Method: This qualitative study used…
Descriptors: Parent Attitudes, Health Services, Down Syndrome, Medical Services
McNeil, Karen; Achenbach, Jillian; Lawson, Beverley; Delahunty-Pike, Alannah; Barber, Brittany; Diepstra, Heidi – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although the Canadian Consensus Guidelines for Primary Care of Adults with Intellectual and Developmental Disabilities recommends conducting periodic health checks in primary care, uptake is lacking. This study seeks to understand factors influencing the conduct of periodic health checks and identify what needs to change to increase…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Developmental Disabilities
Sarah H. Ailey; Molly Bathje; Renáta Tichá; Brian Abery; Belle K. Khuu; Lisa Angel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual and developmental disabilities are among the most underserved in an inequitable healthcare system. Methods: Using Arksey and O'Malley's methodology and a social determinants of health framework, we conducted a scoping review of literature on the state of practice in education of healthcare professionals in the…
Descriptors: Allied Health Personnel, Intellectual Disability, Developmental Disabilities, Access to Health Care
Madelaine Carter; Nicole Bobbette; Sabrina Campanella; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Workers in the intellectual disability sector encounter significant work-related stress impacting their mental health. This study explores the barriers faced by these workers when accessing mental health support during the pandemic. Methods: 1831 surveys were completed by intellectual disability support workers from Ontario, Canada…
Descriptors: Employees, Intellectual Disability, Barriers, Mental Health
Nicholson, Emma; Conlon, Ciara; Mimmo, Laurel; Doherty, Edel; Guerin, Suzanne – Journal of Applied Research in Intellectual Disabilities, 2022
Background: The provision of unscheduled healthcare for children with intellectual disability is less researched than that focused on hospital settings or for adult services. The aim of the scoping review was to map the evidence base in this area and identify areas for future study. Method: A five-stage scoping review framework was adopted.…
Descriptors: Access to Health Care, Intellectual Disability, Children, Family Needs
Ariel Schwartz; Nikola Davern; Alix Herer; Micah Peace-Urquilla; Jesse Corey; Dheva Muthuramalingam; Neha Vallabhaneni – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response. Methods: Twelve…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Mental Health
Heslop, Pauline; Byrne, Victoria; Calkin, Rachel; Huxor, Avon; Sadoo, Annie; Sullivan, Brian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: People with intellectual disabilities experience significant health inequities. The aim of this report is to understand the circumstances leading to death from COVID-19 in people with intellectual disabilities. Method: Local areas in England prioritised reviewing 200 deaths of adults with intellectual disabilities. Of these,…
Descriptors: Death, Intellectual Disability, Foreign Countries, COVID-19
Matteo Giuriato; Alessandro Gatti; Vittoria Carnevale Pellino; Alice Bianchi; Sara Zanelli; Agnese Pirazzi; Caterina Cavallo; Antonia Quatrale; Alessandra Anna Gazzarri; Matteo Vandoni; Gianvincenzo Zuccotti; Valeria Calcaterra – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Limited knowledge exists regarding the effectiveness of training programmes for individuals with Down syndrome, particularly innovative approaches like tele-coaching. Our pilot study aimed to improve strength and balance using tele-coaching sessions in children with Down syndrome. Materials and Methods: We enrolled 18 children and…
Descriptors: Telecommunications, Coaching (Performance), Pilot Projects, Psychomotor Skills
Navas, Patricia; Verdugo, Miguel Ángel; Martínez, Sergio; Amor, Antonio M.; Crespo, Manuela; Deliu, Madalin M. – Journal of Applied Research in Intellectual Disabilities, 2022
Aim: This study analysed the impact that COVID-19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Method: Data on 323 family members (M = 52.3 years old; SD = 10.5) were collected through an online survey, which was focused on analysing…
Descriptors: COVID-19, Pandemics, Foreign Countries, Intellectual Disability
Zarotti, Nicolò; Hudson, Clive; Human, Hannah-Rose; Muratori, Greco; Fisher, Paul – Journal of Applied Research in Intellectual Disabilities, 2022
Background: People with intellectual disability often receive diagnoses which may complicate their clinical care. Among these, personality disorder diagnoses are still considered contentious. Little is also known on the perspectives of staff caring for people with intellectual disability who have received a personality disorder diagnosis. Methods:…
Descriptors: Health Personnel, Intellectual Disability, Personality Problems, Comorbidity