ERIC Number: EJ1326771
Record Type: Journal
Publication Date: 2022-Mar
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
Available Date: N/A
Impact of COVID-19 on the Burden of Care of Families of People with Intellectual and Developmental Disabilities
Navas, Patricia; Verdugo, Miguel Ángel; Martínez, Sergio; Amor, Antonio M.; Crespo, Manuela; Deliu, Madalin M.
Journal of Applied Research in Intellectual Disabilities, v35 n2 p577-586 Mar 2022
Aim: This study analysed the impact that COVID-19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Method: Data on 323 family members (M = 52.3 years old; SD = 10.5) were collected through an online survey, which was focused on analysing difficulties experienced and service provision during lockdown. Results: Many families (66.3%) have seen their level of stress increased during lockdown because of, among other reasons, a greater burden of care. Difficulties were associated with the closure and changes in disability-related services. Families of people with extensive support needs have generally experienced greater difficulties. Conclusion: Support services should have been considered essential services during lockdown. The failure to receive support has resulted in excessive burden on families, who had to assume a multitude of roles to support their family member with intellectual and developmental disability.
Descriptors: COVID-19, Pandemics, Foreign Countries, Intellectual Disability, Developmental Disabilities, Access to Health Care, Stress Variables, Family Role
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Spain
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Author Affiliations: N/A