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Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
A Qualitative Study about Quality of Life in Brazilian Families with Children Who Have Severe or Profound Intellectual Disability
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Rodrigues, Stephania A.; Fontanella, Bruno J. B.; Avó, Lucimar R. S.; Germano, Carla M. R.; Melo, Débora G. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. Methods: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic…
Descriptors: Foreign Countries, Quality of Life, Severe Intellectual Disability, Family Environment
The "Diagnostic Guideline for Anxiety and Challenging Behaviour" for Persons with Intellectual Disabilities: Preliminary Outcomes on Internalizing Problems, Challenging Behaviours, Quality of Life and Clients' Satisfaction
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Pruijssers, Addy; Meijel, Berno; Maaskant, Marian; Teerenstra, Steven; van Achterberg, Theo – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities are vulnerable to develop psychopathology (in particular anxiety) and related challenging behaviour. Method: A comparative multiple case study with an experimental and a control condition. Results: The application of the guideline showed a trend of decreases of internalizing problems (P = 0.07) and…
Descriptors: Guidelines, Behavior Problems, Anxiety, Comparative Analysis
Mediators of Well-Being in Ageing Family Carers of Adults with Intellectual Disabilities
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Minnes, Patricia; Woodford, Lynn; Passey, Jennifer – Journal of Applied Research in Intellectual Disabilities, 2007
Background: Increasing numbers of adults with an intellectual disability are being cared for at home by ageing parents. The purpose of this study was to determine whether carer resources (i.e. social support and formal service use) and carer appraisals of ageing and stress/burden mediate the relationships between (1) maladaptive behaviour and…
Descriptors: Behavior Problems, Mental Retardation, Quality of Life, Disabilities